So..
I got my diagnosis 5 days ago, it started with reflux and epigastric pain in November last year, went for an OGD, told I had a stomach ulcer and hpylori. Given eradication, felt better, but reflux still there, had my repeat scope 6 weeks later and ulcer still there so a biopsy was taken… adenocarcinoma stage 2-3, not spread to any lymph nodes or organs.
I’m so angry that a biopsy wasn’t done on my first OGD, so so so angry!!!
The plan now is, staging laproscopy, FLOT chemo, total gastrectomy, more chemo.
I am a nurse, and I am so worried about dying and I’m so worried about leaving my partner and my family behind.
Life doesn’t feel fair and I asking myself why me?
Has anyone had a similar diagnosis to me and is further along who can support me?
Thank you
Chloe x
Chloe
What a shock for you especially as you are so young! I had stomach cancer five years ago and had chemo and a partial gastrectomy. I am now well and eat and drink much as before but smaller portions.
There are many people on this group who have got through the treatment. It is tough but I found lots of support on this group. I am sure you will have lots of advice especially as you are a nurse. Once a treatment plan is in place it’s easier!
Take care x
Jac
Hi, I’m sorry to hear your news, I got diagnosed last November after visiting the GP a number of times over a 6 month period. I have recently completed the first 4 rounds of chemo and now waiting for the surgery at the end of April,
I found that drinking plenty of fluids helped with the chemo side effects. My hair came out after the second treatment, and not how I expected, it seemed like it just got very weak and broke off, I’m telling you this so you are aware because I didn’t expect it to happen like that and it may help you to be prepared.
It’s a lot to take in and your mind works overtime which you need to process the information. It does get easier once you start your treatment plan. I have found that this forum and family members are an amazing support.
Good luck to you, happy to answer any questions you may have x
Hi Chloe
I had ECX chemo as FLOT wasn’t as common five years ago. My cancer was found very early and there was no spread. It was at the bottom of my stomach so I had a couple a partial gastrectomy. I wrote a Blog of my treatment which you can read if you click on my Profile.
I focused on the things I could control.. building my strength physically and mentally.
I found chemo tough but others have fewer side effects. But it does work! In my case it eradicated the tumour. For others it shrinks.
It’s such a shock to be diagnosed but I now look back and wonder how I got through it. You will get through this so hold on to hope! Xx
Jac
Hi, you will get through this, there will be days that you struggle more with but everyone is behind you at every stage. You will get a proper staging after the laparoscopy. Ask the Drs and clinical nurse specialist as many questions as you need in order to have a full understanding as some areas use different staging procedures. If you’re anything like me I wanted to know everything without it just being said nicely.
If you are googling please stick to NHS, Mackmillan or Cancer Research, other websites can be quite daunting and not give you the proper facts/ audit responses.
Do your best to keep positive and accept support, it’s ok to have a bad day we all do it regardless of what our situation is x
Jac suggested this book, I got it on kindle, easy to read.
I also got this leaflet
https://www.hey.nhs.uk/patient-leaflet/patient-information-total-partial-gastrectomy/
I know it’s early days for you and your waiting for treatment, I just wanted to share with you some of the things that have made me feel more positive x
Hi Chloe
My original diagnosis was an ulcer caused by hyperpyloribacter. I was then told it was stomach cancer.
I had a full gastrectomy 3 years ago and I have since returned to a near normal life. I had 4 rounds of flot before and after surgery
Very best wishes for your treatment that I am sure will be as successful as mine
Best regards
Chad1
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