Immunotherapy

Hi Hope

I am sorry that you have not yet had a response to your question, but sometimes it can just take a little longer for someone to see it and respond. 

I am sorry to hear of Dad's stomach cancer but as my own cancer was different to his I am not sure about the immunotherapy. By me replying it will bump your post and hopefully someone who has had a similar experience will see it and offer support. 

While you are waiting for a reply, why not give the Macmillan Support Line a call and talk to one of the nurses about Dad's treatment regime- they would be able to talk you through it. They are there from 8am-8pm daily. 

I wish your Dad the best for his treatment and if there is anything else you need, please do ask. 

Jane

I'd be interested to hear this, too. My 83 year old mother is also Stage 4 and is 10 days past her 1st infusion of Folfox and pembrolizumab. We're both trying to stay as hopeful as possible. She gets the pembrolizumab every 6 weeks, and Folfox every 2. 

Her side effects: Little nausea. 1 day of diarrhea. No headaches or sensitivity to cold. Just extreme fatigue kicking in on Day 3. Plus, the scariest side effect, was severe chest pains that lasted 10 minutes. That happened twice. She thought it was a heart attack. I feared it was a coronary vasoplasm, but the oncologist said it wasn't. She suspects heartburn and advised us to start omeprazole again, which helped for about 5 days but she just had another chest pain attack this morning. 

Lots of insomnia. We're trying both 1-3 mg of melatonin and tonight, will try magnesium glycinate 400 mg. Would have tried the magnesium earlier, but I bought a form that was in a large capsule and my mother couldn't swallow it. We tried to mix into apple sauce, and it was so bitter, it was inedible. Found mini caps from BioSchwartz on amazon that I've ordered. Until it arrives, we'll try a gummy form.

I'm wishing you and your dad good days ahead.