Hi everyone
I’m Claire and I’m 40, and recently discovered I have stomach cancer. After many tests and no real symptoms other than 2 isolated incidents of vomiting blood (months apart) I have been diagnosed with stomach cancer / it’s in the upper stomach on junction of oesophagus. No medical history / healthy active etc I am fortunate in that I am being offered chemo op to remove all of stomach followed by chemo again.
to say I’ve been left floored would be an understatement and I know you will all understand - feeling like this isn’t real / moments where you almost forget and then reality whacks you in the face again! I have a child who just turned 5 and whilst he is absolutely my driving force for getting on with this I often feel a huge sense of guilt / failure that I’m in this situation that whether I like it or not will impact him in some way.
That said I have mainly been positive and focused on the controllables such as gym and diet Staying busy. Although I am lucky to be signed off work as my job is stressful and I couldn’t work adhoc as it just wouldn’t work - I am finding the days sometimes long.
I got my chemo schedule yesterday and thankful to be starting on Monday 22nd May and my last one will be 3rd July. I know it doesn’t really matter how bad it is for me as I have to do it I’m just feeling a little scared. Does getting the picc line in hurt? Can you still bathe etc? How realistic is still doing some gym throughout chemo? For those that did did it help? Also another question is what did you all pack in your chemo bags? I’ve been told I can’t take anyone with me which I totally understand But keen to hear what things be you all took and what helped etc. did you take snacks etc. the oncologist said I’ll be fine and I’m likely overthinking ….. sorry for rambling. I must say I have taken so much comfort from reading all the posts in here for the last few months. You’re all so inspirational and have helped give me some strength so I’d like to thank you for that.
Claire xx
Good morning,
No problem at all as I say if I can be of any help then just send me a quick message.
aww thank you, there will be tough days but like you said about your son they become your driving force and you still make an effort to enjoy life as you want them to make happy memories and have new experiences. Some days everything seems to revolve around the big C but others it’s just a part of what’s going on. I’m sure this will be similar for you in time.
yes I did get the neuropathy and I found that it built up slightly with each session. I wore gloves when getting things out of the fridge and washing machine and slippers in the house (tiled floors can get a little cold sometimes so maybe also put a bath rug down in the toilet so you’re not caught out by tiles on an early toilet run ) also don’t drink any cold drinks, just have them at room temperature or warmer. I have had no symptoms of this since finishing the first four rounds of chemo.
yes I was told the same re my age, there are a few of us but it is rare. I had a signet cell cancer so like you was worried for my daughter and went ahead with the genetic testing. Luckily I was told that mine wasn’t genetic but they can advise you on the best course of action either way.
It’s good to stay positive and that you have a treatment plan, time moves quickly so just take each hurdle as it comes and it’ll all be just a memory soon x
The port a cath line will be something that I might enquire about, that’s the beauty of these forums there’s so much great advice and a real understanding of what you’re facing and going through. Some of the suggestions are things that I never would have thought / known about prior.
Thank goodness he had the ct it’s scary to think how silently this cancer grows and so many with very few or no symptoms. Thanks regarding the feeding tube. For some reason I thought I’d have that for like 9-12 months.
thanks again for replying. Even logging into this site sometimes seems like a dream. Hope you’ve had a lovely weekend. The sun has been glorious here xx
You really sound like you have it so together we had my sons 5th birthday party yesterday so that was such a lovely distraction although I’ve been super tired this week. Worried my iron levels have floored again but I only had infusion a month ago. Did you experience a period of time perhaps when your adrenaline of this crazy situation coming off the ceiling and feeling tired? The period of waiting and panic for results etc is over for now and I’m just waiting now for the chemo to start. Or maybe I’m just overthinking everything! Thanks for the encouraging info re neuropathy- just have to hope it subsided after chemo if I’m affected and remind myself it’s a small price to pay in the grand scheme of things. Claire xx
Red10 thank you so much for this advice. I will be sure to ask this. I take it this is different from a picc? Honestly I’ve been told so many things and it’s all new terminology my head is frazzled. cologist said I’ll just have something in my arm a picc. My date for that is Monday 15th is this different to a port a cath? Is there any increased risk etc with this? Anymore pain? I’m a wimp
really need to get over that in the coming weeks!!!
Claire xx
Claire
1 do not take anything food wise with unless your onca special diet
2 you can tske your partner in with you for the fi
rst part another talk about more meds and whats going to happen, p
3 take good book papers ear phones
4 and as much as you can if you can
clean your rubbish
You will notice how busy the ward is and staff are great to make this experience more easy for you on your first time
Take a pen and paper with to make notes
Nic nac
Hi, all the intel you need is better articulated here than I can ever put it ! …
I had no clue either which or what to go for when my surgeon asked me but I went for this and was super glad I did in the end as it made everything so breezy and easy, no faffs.
Im a whimp too and the procedure to have it was really easy and I didn’t feel a thing, even tho it involves minor surgery, they just give you a local anaesthetic and you’re then none the wiser and I sat playing on my phone and didn’t feel a thing and it was all done !
Hope that helps sharing some different experiences !
Hi,
Awww thank you, believe me when I say that I have my days where things get on top of me but we’re only human and it’s good to have this group to discuss worries and concerns. A lot of the people who have replied to your post have helped me through so you’re in good hands.
I was tired in the beginning and am still now in all honesty but children and major surgery will do that you’ll probably find that you’re not sleeping as well at the moment too. I remember the feelings and fears that you’re describing well. You’ll start treatment and your fight back soon but If you’re worried speak to your GP and have your iron levels etc checked.
i’m an over thinker and a massive wuss so if I can get through it I’m sure that you can too, I think a lot of the time we jump to worse case scenario as a way of preparing ourselves, just take one hurdle at a time or you’ll over face yourself.
I hope your little boy had a lovely birthday. We celebrated my daughters birthday the day before my 3rd chemo session and we were out and about and went to gusto for lunch so hopefully that gives you some confidence that you will still have good, happy times throughout this. I actually started a scrap book with all the good memories my family and I have made during this time so when I look back it’s not all about treatment, that’s just a part of what’s going on x
Claire
its good to talk and share your feelings no one wants to be in this chat group but it certainly helps you find some answers to your question and fears
1 DO NOT GOOGLE anything it will not help your mental state ask your nurses questions you have
2 Picc line you do not feel any pain from it going in just a needle to numb it it takes 30 mins
3 you can get a shower cover that goes over it to keep it dry
4 I was told no weights during exercises on the left arm due to picc might move
5 I was a nervous wreck over thinking over worrying about treatments and keeping it to my self . Which i know now is wrong you have a great team behind you GI nurses Chemo nurses and of course you have this group of fantastic people
stay positive and strong its a long journey we are all on
regards
Nick
Nic nac
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