my journey so far

It is such a hard journey. I feel I quitting. We will get through this. X

Hi sorry it's been a while. In all honesty sometimes I just want to get on and forget about this saga but there's no running away! Im now four months post op and after 2.5 months thought I was done with dumping syndrome BUT no its back. I also feel so bloody tired and they gave me iron but im still tired. Im back at work but work and rest is all I can do on those days. My doctor put me on vitamin B12 tablets!!!! BUT they are sublingual as she said they are absorbed in the mouth? I did feel a bit more energetic but its a lot of ups and downs. I genuinely thought id be fully recovered and eating is not pleasant. im hungry and after three or four spoonfuls the novelty wears off and the discomfort starts. my abdomen has also recently become tight as a drum and paranoia sets in and I think of all sorts of things thank god apart from here I don't share those fears.Plus I feel a bit mentally dull, not that I was that riveting to begin with but jay's now I can't even think of a word. I am eating larger portions though and I force myself to eat all day just to maintain weight so I don't look more like a skeleton. I realise people have much more challenging times and I do feel grateful to have a successful operation but I do wonder if eating will get better and not be so unpleasant?

well that's absolute crap for you. I really hope now you are home that recovery will be more smooth. I think we have to embrace the good things like how you had a successful operation and seriously how they think chemo onto of post op gastrectomy would be a good idea? I still feel sick just eating. its comforting that others have proceeded with chemo but they also have had to have adjustments so try not to focus on the next treatment go to your appointment and ask them "How can you prevent my last reaction recurring?" Ask them what their plan is and get them fully on board and prepared to be very vigilant to prevent any more unpleasant surprises!

Dad starts post op chemo on Monday, it was meant to be yesterday but we received a text the day before informing us the dr didn’t complete the necessary paperwork so wouldn’t be able to go ahead. Muhas just gone for her three monthly scan this evening for her small cell lung cancer

MillyE, my husband and most people I’ve heard about have B 12 injections every 3 months, we was told there better than the tablets also you may need iron tablets. My husband knows it a few weeks before the 3 months is up, not much energy, he’s also low in iron that makes you tired as well, he can’t have iron tablets yet as he’s been tested for something else at the moment. He had all his stomach out in Jan. Good luck and  try for the injection xx

Hi my eating after surgery got better. But since starting chemo I can’t eat and have that fullness feeling after few bites. My surgeon told me not take B13 tablets. He said have injection as they are better. Maybe speak to your doctor and see if they give you injections? 
if you find any solution to dumping syndrom please do share. I am trying green tea which does help.   

Sue 

Is everything ok , i am still having trouble with bole . GI nurses sre looking for a solution . I think its something  to do my toilet  abits not being right at moment 

Stsy Safe xx

Excuse fat fingers lol

Ahuss

My operation  was in August. Since then  I can not get eating correct which causes bsd bile . I didn't  think stupidly how long this recovery  is going to be 

Nic I did reply to your post with what the surgeon told my husband to take for bile, have you read it x