With a soft tissue sarcoma diagnosis I feel in total meltdown. I live in Italy and have a caring supportive family but I just really don't know what to expect.
I have just replied to your post to me on the other thread.
I hope you pick it up
the nurse Said today when I Spoke to her that there was still nothing back but... she did say they've not yet got tomorrow's in yet so it's possible they could be back later today. She said they're chasing. I asked is the delay due to COVID and she said no it's because it's a very rare biopsy because of where it is etc and so they need to do lots of extra tests to clarify exactly what it is
Thanks for replying. I will stay in touch. Tomorrow I shall have a full body scan, then consult with radiotherapy department. It is so overwhelming. Hope you get your results soon and they are all good. Sarah
No nothing yet, if I don't hear anything at 1pm Today I will phone to ask the nurse, I am finding myself doing this every other day now.
it's four weeks today since the biopsy was taken, like the nurse said on Monday it's a strange one because of were it is as in my deltoid muscle, trust me to get a strange one
how are you did you look at the sarcoma uk website?
The waiting is hell. As I said I found out after 19 days. I have this sarcoma on the front of my thigh in the muscle. I had a full body scan yesterday and the results came back immediately. This morning I had to get some paper work to not pay for all these tests and visits and the fact I don't have italian citizenship ( been in the country thirty odd years) the woman said she would just have to check. Thanks again Brexit!! Everything was fine as I am a law abiding citizen , married , mother of three. I think I was ready for meltdown. The scan was fine but will have a more senior person check it. I shall keep everything crossed for you. Bye for now. Sarah66
BTW I don't know how the hell I put MOT as a nick name?? Brain isn't with it.
how are you? I hope things have settled down and you can now get on with your treatment.
I am still waiting on my results, I spoke to the nurse yesterday and it's because one test has lead to another and then another!!
i don't really know what to think anymore
I asked the nurse that if they confirmed it was cancer would I then have to have a CAT scan, the nurse said if there was any more tests this would not impact on my treatment plan and they would be done there and then at my consultation.
It's a Nodular fasciitis it's a tumour but not a cancer one I have to now wait for an appointment with the consultant to see what he is going to do about it
So pleased you got an OK diagnosis. I completed my first chemo course. I have become a patient. My consultant says I have gone into depression because of this outside event. You don't need 12 years of medical studies to understand that. I was kept in the hospital as the stuff they gave me is pretty potent. I got home yesterday evening. I had a provisional port put into my cava vein as there wasn't a surgeon available for the other one. My friend is coming to cut my hair today as the nurses say it is less traumatic if your hair is short falling out. I have a shoulder length Bob. Silver streak at the front as I never dye my hair. I have been able to eat a bit of weetabix and a kiwi. Hard going to say the least. Take care. Xx
So pleased you got an OK diagnosis. I completed my first chemo course. I have become a patient. My consultant says I have gone into depression because of this outside event. You don't need 12 years of medical studies to understand that. I was kept in the hospital as the stuff they gave me is pretty potent. I got home yesterday evening. I had a provisional port put into my cava vein as there wasn't a surgeon available for the other one. My friend is coming to cut my hair today as the nurses say it is less traumatic if your hair is short falling out. I have a shoulder length Bob. Silver streak at the front as I never dye my hair. I have been able to eat a bit of weetabix and a kiwi. Hard going to say the least. Take care. Xx
It took several weeks for my biopsy and histology reports. Sarcoma has many different cell types, so for the correct treatments they need to know what they’re dealing with. Sadly sarcoma isn’t one of the well known cancers.
