Leiomyosarcoma

Hope all goes well and wish you all the best!

How are you Jinny, how do you feel?

I’m feeling well.

I have multiple metastases mainly in the abdominal area. Primary was in the stomach, removed in Aug 2020 but metastasis was identified pretty early, March 2021. Since then I am now in my second series of chemo after a 6 month break over the summer. Coping well physically and mentally. Can’t complain.

Let me know if you want to talk, happy to.

Dimitris

Thank you Dimitris.  At the moment I'm coping okay, still recovering from January surgery physically and remaining mentally normal - though of course my husband would dispute that that has ever been the case. 

Has the chemo helped with your mets?  What are they giving you, hope it hasn't been too horrible taking it. 

It's very kind of you to be there when i need to talk, a nice safety net.  Obviously I'm always happy to hear from you :-)

Good to know that you are recovering from surgery and coping well.

Chemo has helped in controlling my mets so far.  We will be checking progress via CT scan end of the month and will be taking it from there.

Take care!

So glad to hear chemo is helping.  We can swap scan results at end of month.  There's a loaded invitation if ever there was...  xxx

Hi,

My mum has experienced the same devastating news.  They gave her 3 sessions of chemotherapy (doxorubicin) which was not successful.  They withdrew treatment and said "months".  They have now come up with another form of palliative chemo called Gemcitibine.  I'd like to know if anyone has experience of this.  I'm trying to cope with losing my beautiful mum and it's the hardest thing in the world.

Hi @jayjay - my wife Janice has had Doxorubicin and Gemcatabine and in her case the Gemcatabine rendered her cancer stable and it has been that way for some years now. The consultant seems very pleased and is actually talking of discharging her to GP care

<<hugs>>

Steve

Oh wow amazing for your wife.  I hope the same for my mum.  She’s going to fight to get more treatment. Everyone has the right to fight their corner.  I hope the consultant listens, and I hope with all my heart it is a life line for my mum too.  

Hi, I realise your thread is quite old now but can I ask you if  following the breast cancer you took tamoxifen?