Leiomyosarcoma

Sorry that should read eight years

Oh Annie, mine is in my lungs too.  How are you coping - huge hugs xxx

Oh no Nanci, also lungs.  Thank you for the fb group info. What an unfortunate club to which to belong :'-( xxx

Is there ANYONE here who has ever had surgery or ablation therapy for a lung met?  My understanding is that removal is the recommended treatment in USA.  I'm going to query it on the fb leiomyosarcoma groups too.

Hi. I haven’t, but they were thinking about ablation,  before my recurrence decided to show its ugly face. 
I think they have to be a certain size 

I’ve seen people on here that have had surgery 

xx 

Thanks Jane, that's interesting, how you this weekend? xxx

Hi. I’m ok thank you. Had nice weekend with my husband, he did a Racing day at thruxton yesterday, which was brilliant. 
How are you? Xxx

Hi Jinny,

I had ablation therapy but not on lungs. It was a liver met. Fairly light procedure, minimally invasive and very quick recovery. But indeed it has to be up to a certain size which I suspect may vary on where it is located. I did it in October last year and the one they zapped on my liver was about 4cm and it was boarderline. No issues with the particular tumor since then.

Let me know if you need any other info.

Dimitris

Many thanks dimitris, how are you now?  Inn at the beginning of it all, primary removed, watch and wait on 3 lung mets

That sounds lovely and there was some sunshine too :-).  I enjoyed seeing daughter telling relatives that she's expecting her first.  I'm hysteroscopy tomorrow (don't think it'll show anything bad) and thinking of starting back to work the following week after Easter.  Bit nervous as i do still get a little tired but i think I'm being over-precious about it!