Liposarcoma recurrence update

Hi Soarky 

Im so sorry to hear that, I think that’s awful, to open you up then change mind.

I agree, it’s like they don’t want you to ask questions I hope you get some answers from the nurse soon. 
Here if need to talk, hope feeling ok

love jane xxx 

It's rubbish.  Do you want to come on whatsapp Sparky? xxx

Hi Everyone, hope you're doing ok. I have had an eventful week since getting home from hospital, my wound popped open! The poor nurse who took my staples out was mortified! It popped open bellow my belly button, I had 47 staples by the way! There was obviously a small part that was slightly infected and was never going to heal below the staples. Any way she called for an ambulance as we were all worried the whole lot would go! They said that if I made it to the toilet with no major incident then I'd be better off going to A and E by car because it would be hours and hours of waiting for an ambulance, which is what we did. We cancelled the ambulance and I then spent 3 hours waiting for triage then another 3 waiting for the surgical team to come and take a look. My husband counted 22 ambulances outside! The lovely surgical chap then told me it needed to heal from the inside out, filled the hole with packing and covered it all with a dressing. So, all is ok now but it is a bit weird walking around with a gaping hole in your tummy! It is healing well apparently and won't take long which is great. I am now waiting for my surgeon to phone me this weekend as he is on call, to answer all my questions about why he stopped the operation. I just don't understand what he saw when he opened me up. Why am I inoperable. Without further treatment, what will happen to me? I have an Oncology appointment on the 25th. Of course we are thinking the worst but trying to be positive, what a strange place to be. Anyway, hope you're all able to eat lots of chocolate this weekend! Take care Love Sparky xx

Sparky you've been thru a nightmare both physically and mentally.  I wish there was something we could do other than offer an ear and virtual hugs. 

Lots of those virtual hugs xxxxxxx

PS. I had 68 staples <competitive boasting!>.  I also have oncology appt that week on 28th.  Sounds a bit as though we're both heading for chemo... xx

You poor thing, sounds horrendous. But as we all know, anything can happen, I feel like I’m just waiting for something else to go wrong. I hope you’re now healing well. I can’t believe you had to wait so long to be seen. It’s just scary and doesn’t fill us with confidence, going forward. 
I have my radiotherapy CT scan on the 29th. Then I may be heading for chemo too  
I hope you get some answers soon. 
Meanwhile, enjoy Easter, chocolate, and the ️, as best as you can. 
Sending big hug  

Speak soon, anytime 

xxx 

Hi both!  My earlier mail was clipped cos i accidentally broke site rules about giving my email address publicly.  I received a very kind email explaining and saying that we can send private messages on the site - I've asked for more details. Love to you both xxx

Hi Jonny 

If you click on someone’s name, then big cross top right, can send private messages that way 

xx

Jinny not Jonny  

Ah, great, I'm just waiting to see if site allows us to exchange phone numbers in private messages...