Hello, I am new to all this and thought I would say hello. I’m Jo, 35 years old and from Kent.
I found out 10 days ago that I have a sarcoma in my pubic region (these appear to be quite rare from what I have seen- my GP said when I first saw her that she would be very surprised if it was anything ‘nasty’, once in a career type case!). I am under the care of the Royal Marsden in London, I have had an MRI and biopsy and my consultant said they believe it is low grade and do not think it has spread, but I have a CT scan booked for Thursday to check. They also think they should be able to get a good margin with surgery and I won’t require any further treatment... but I guess I will know more after the surgery and the tumour has been examined!
I have a provisional date for surgery of 19th May, although am awaiting a date for a pre op assessment and corona test which I understand need to take place first. I’ve never been under general anaesthetic before and to say I’m feeling anxious about it would be an understatement. I also have a raised BMI which I understand increases the risk of surgery- at the moment I think that is where a lot of my anxiety is focused.
I have private healthcare through my work and feel very fortunate to be able to be seen so quickly, especially in the current situation.
These are such strange times to be going through something like this. I have surprised myself with how I have coped so far, but I have a feeling the anxiety over the next week or so is going to ramp up as I await my surgery. I’ve been quite good at putting my worries back in ‘their box’ until I need to deal with them, but they appear to be coming to the front of my mind a bit more often now! I also find myself getting more irritated by family and snapping at them more than I should, I suspect this is due to my anxieties.
I have a 2 year old son and I’m terrified of not being around to see him grow up- but the rational side of me is telling myself to stop letting these thoughts run away with themselves (sometimes easier said then done).
Perhaps there is someone out there going through a similar thing? Anyone else had a sarcoma in the same kind of area or can reassure me about having surgery? I’m not really sure what I’m looking for, maybe I just wanted to ‘speak’ to people who understand how I am feeling at the moment (as much as they try, I don’t think my family truly understand). I think I feel a bit better for putting myself out there.
Thanks
Jo
