Synovial Sarcoma in Offsping

Sorry to hear of your loss after a 10 year battle. I don’t have knowledge of or experience of this but I suggest neither does the arrogant Dr your son saw. There is not sufficient research to be so confident given your circumstances and I would get a second opinion . Many cancers have been shown to have a genetic component.  Drs have a duty of care and I suggest little is being done here to alleviate your fears.

I went to my Dr for 4 years with the same complaint until I finally said I knew it was Cancer if they did not . 2 weeks later diagnosed that I had stage 3c carsinosarcoma and had had it at least 2 years. Always trust your instincts and never be afraid to get a second opinion.

You have been through enough not to have your fears put to rest. It may well be only “ growing pains” but all persistent pains require investigations especially where there are genuine concerns. Trust your instincts. I wish you well and hope you get the reassurance you require by getting another opinion and your son scanned if the pain persists. Record who you visit and when.

Lots of hugs to you and your sons xx

Hi there, I was diagnosed with Synovial Sarcoma 6 years ago but it took 4.5 years to be diagnosed and during that period I was pregnant with my daughter.  18 months ago my daughter started complaining of pains in her knee which is where I had my tumour.  I asked my CNS if sarcoma was hereditary and she said there was no evidence to suggest it was.  My daughter did have an ultrasound on her knee and thankfully it was growing pains, but that came from the hospital that mis-diagnosed me!  I would be interested to hear if you find anything out regarding it being genetic or hereditary. I'd be devastated to think I passed something onto my daughter but equally I have to be realistic in that it's a possibility.

Hope you manage to get a scan for your son and that he gets the all clear.  Good luck

Thanks for the reply. I think you’re right about trusting instincts. I have an appointment lined up with another doctor for another opinion. Hopefully this one will order scans. 

Jellytotmum, thanks for the reply. I’ve been told that synovial sarcoma is a young adult cancer, often being diagnosed between 16 and 34 years of age. I’ve also heard that it does have a genetic component involving chromosome X and chromosome 18 but that it is not inherited, which I don’t completely understand. My husband lived with the disease for at least 11 years before it was properly diagnosed. We all know that catching any cancer early is much better, so I’m often talking to our boys about paying attention to any new pain or sensations in their limbs. I wonder if there are any studies being done with children of affected parents. If not, there should be. I do have an upcoming appointment with a new doctor for my son. Hopefully, they will run some scans.

Enjoy your baby girl, it will surprise you how fast they grow and change. I love seeing my boys becoming great young men, but I sure do miss their baby/toddler years.