The unknown

I am sorry that you find yourself in this position. Please don't Google. It can scare you. It is a tough situation to be in especially fearing for the future. Over two and a half years ago I was in your position. Backwards and forwards to the GPS with a pain and a lump in my thigh given lots of different reasons for this. In the end I was referred to the sarcoma unit in London. It wasn't until I had an operation to remove the lump they found it was a leiomyosarcoma. I had clear margins and so far and long may it continue my tests have been clear. That was two years ago. Take one step at a time. Ask questions. Do you have a specialist nurse you can speak to. I went to a local support group which helped. Sarcoma UK's website is a good place for help and info. I am here if you want to talk. Best wishes to you. 

Thank you so much for your reply.  I have noone at the minute until I go to Christie's tomorrow I am in total limbo, it is definitely the unknown.  I usually have a very active life too and I'm struggling to walk at the minute so that is having an impact too.  I am so blooming emotional especially when I see my kiddies, I just feel so bad on them too.  I am trying so hard to keep positive but it's just been bad news after bad news since just before Xmas.  However I am going with an open mind tomorrow to see what they say and we take it from there x

Good luck at your appointment tomorrow. Please let me know how it goes. The waiting is the worst, we imagine all sorts. Once you know what you are facing it's a step forward. I was the same as you couldn't walk, was very frustrating. I can imagine it's tough with small children to care for. It's so hard not too be emotional. Take care x 

Hi, biopsy still not back but they think Ewing sarcoma (soft tissue).  I have 2 tumours one on either side of pelvic bone, so bum and groin.  I have to have some more scans, heart, kidney etc and then start chemo next Thursday.  They have said it's an intense chemo regime which is daunting but right now anything that they are willing to throw at it I will take. Hope you're doing ok x

Hi - just wanted to say that I had a fibrosarcoma in my shoulder 40 years ago. They couldn’t operate because of the nerve involvement so I had intensive RT and chemo. 
Wishing you all the very best with your treatment x

Glad to hear you came through it all well and thank you so much for your words of encouragement.  Info on sarcoma is either limited or scary.  I am nervous but have my little ones willing on my strength and recovery x

Good luck today x 

Glad to hear that things went well for you. Forty years is a long time. I love to hear the positive stories Long may it continue. Best wishes x

Hey. Sorry I've only just seen this message amongst the others. Wishing you luck with your treatment. I've not been through it but you have the right attitude to want to throw everthing they have at it. Hopefully the biopsy will be back soon. I am OK thank you. You can direct message me anytime if you want to chat. Take care x 

Hi Courtlandcats. I've just read your profile. Best wishes with your current treatments. Life really does like to throw some curve balls in. I had no idea about radiotherapy sometimes causing other cancers either until I was researching sarcomas. Here if you need to chat. Best wishes x