Retroperineal Liposarcoma Too Big To Remove

FormerMember
FormerMember
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Hello,

I posted on here a couple of months ago after my husbands diagnosis, we had quite a wait for appointments/tests etc and were all geared up for surgery on Monday - he had another CT scan last week, just as a precaution so there were no surprises come surgery and it showed it the tumour had grown aggressively (they are supposed to be slow growing) and was now to big /too close to major vessels/arteries to remove.

He's been admitted to hospital and after 2 days of tests is now undergoing intensive chemotherapy via a pick line for 4 days to see if the tumour can be shrunk enough to operate. He's got to have 2 to 3 sessions 21 days apart and then they will rescan to see if there is any progress, if it has shrunk, they may give another session and then proceed to surgery - unfortunately there is only a 35% chance the tumour will respond to chemo.

We are devastated, trying to be positive, in just 3 months our lives have been turned upside down.

Has anyone any experience similar to ours?

xx

  • Hi @sindystar, sorry to hear about this. My wife's cancer was never operable and when they suggested chemotherapy we were told that sarcoma did not often respond to chemo but it was our only option. She had two different types of chemotherapy and the cancer not only responded but appears to have gone pretty dormant. Her oncologist is amazed and we have been living with cancer now for 6 years.

    There are of course quite a range of forms of sarcoma and the statistics only cover the entire group - what you will be really interested is what happens to your husband and if he ends up in the 35%.

    <<hugs>>

    Steve

    Community Champion Badge

  • Hi - just to say that although my experience with soft tissue sarcoma was a long time ago, it responded very well to chemotherapy. It was inoperable too - I had radiotherapy and chemo 

    xx

  • Hi  - just to say that although my experience with soft tissue sarcoma was a long time ago, it responded very well to chemotherapy. It was inoperable too - I had radiotherapy and chemo 

    xx

  • FormerMember
    FormerMember

    Hello.... The very same happened to my dad and I know exactly how you feel.  I found the MacMillan support line and the support line at Sarcoma.org really useful in helping me understand exactly what was going on and how to cope with the very difficult circumstances you find yourself in.

    Huge hugs to you xxx