Struggling

Hi , welcome to the community though so sorry to hear about what you have been going through and especially to hear about your dad too. 

After my wife's emergency hysterectomy her wound split open so can relate to issues with the district nurse and the dressing changes, but the god news is it did get better, it felt almost like a miracle.

With the Crohns too it is no wonder you are finding things difficult and I am so glad you found us here, it is so much easier to empathise when you have real experience and Janice and I have been living with Sarcoma now for 6 years.

Normal, no, you are amazing.

<<hugs>>

Steve

Dear Jan You have had a terrible time! No wonder you are struggling. I read your post yesterday evening and my immediate thought was that any one of the things you have would be challenging to have all of them together is beyond tough! Don’t worry about crying and breaking down it’s all of the grief coming out. After I was diagnosed I had some counselling with Macmillan and it gave me a safe haven and the counsellor could listen to me without being personally affected by my distress. Your friends and family are too close to you and will find it tough to let you because they are  so upset by your situation. So consider trying counselling. I really hope that very soon you will begin to emerge from this and feel more like yourself. Good luck. From Janet 

Hi Steve, thank you for replying.

i feel like I can’t talk to my mum about me struggling as she is still coming to terms with loosing my dad. Although she has been great and has been with me to every appointment I’ve had recently. Sorry to hear about your wife but so glad she is through the other side. 
I’ve had so many different dressings trying to find one that helps to close my wound. I’m now on a pico dressing which has a little pump to suck out all the nasty bits in my wound and places it in the dressing. The wound has started to granulate on one side but not the other and I still have a 3cm deep cavity that doesn’t seem to be getting any smaller. I’m so tiered of being tied down to the house not knowing when the district nurse will come. I can’t make any plans because of this. Sometimes I’ve had to change my dressing myself because it’s so full. 
I’m hoping by Christmas that things will be better and I can start the new yr with my physio and get on that road to recovery.

best wishes to you and your wife .

Jan

Hi Janet, thank you for replying.

I think counselling would be good for me and I will certainly be looking into it. I really hope that my wound starts to heal soon and I can start the new yr as a healthier one. 
once again thank you for taking the time to reply.

best wishes

Jan

I think you are doing amazingly well. Just thought I'd say x

Thank you sparky2