isolated limb perfusion

FormerMember
FormerMember
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Hi everyone hope you are all doing well . Has anyone or know anybody that has had this treatment isolated limb perfusion? I had mine 12 days ago and would be nice to hear from anyone who has had this too . Thanks Jillx

  • Hi Jilly, I hope you’re well on the road to recovery. I’ve just been diagnosed with the fourth recurrence of STS in my thigh. One of the options being discussed is isolated limb perfusion. I would be incredibly grateful if you could pass on your experience of the procedure to help me better understand the way forward. Any help would be much appreciated. 

    All the best,

    Shackleton 

  • Hi both,

    Another treatment I had never even heard of until I looked it up here, amazing the techniques they can use now - thought not much use for my wife.

    Hope you get a really good result.

    <<hugs>>

    Steve

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  • Thanks Steve, that is incredibly helpful and gives me a great understanding of the procedure. I just need to get my head around the survival benefits versus ongoing resections. There are downsides to both approaches and I guess ultimately I need to be guided by the MDT. I’ll get there!!

    Thanks again and I hope you and your wife continue to thrive, you’re great beacons of hope for all of us. 

    All the very best,

    Shackleton