BCC forehead nerve invasion pT3

Hi Lukodian and a very warm welcome to our corner of online community which I hope you'll find is both an informative and supportive place to be.

I'm sorry to read how poorly you are and that your excision site is infected. I presume that you have contacted your hospital team and told them about this.

Although I don't have any experience with a BCC that was

Lukodian said:

 focal perineural invasion is noted pt3 nerve diameter 0.1mm bcc

I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.

As you are worried that this description, coupled with how you are feeling, means that your BCC is aggressive and spread, I think it's important that you arrange to speak to either your SCNS (skin cancer nurse specialist), if you have one, or your consultant to find out exactly what this means. 

While you're waiting for replies, it would be great if you could put something about your diagnosis and treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

I think you need to see Consultant again. Doesn’t seem very clear to me what it means.  The questions I would be asking is how do you keep an eye it? What are the signs. Why can’t it be removed with MOHS microscopic surgery.  You could even pay to see a private consultant, you could ask him to explain why it seems acceptable to leave it. It costs about £200 to £250 to see one.  I paid to see one for my Infiltrative bcc in nose. as I was told I would be waiting 2 years.  The private consultant recommended to have treatment under NHS, but agreed it should be done sooner.  I have now had MOHS and a forehead flap and am having plastic surgery this week. I think you are stressed out and scared as I have been.  Your infection, cold sore, and fatigue will make you think the worse.  At the very least you need a thorough explanation of why it is safe to watch and wait.   The mental stress is awful, so if you don’t feel reassured after speaking to your consultant, seek a second opinion.  You need to understand your options before you can decide what to do.  I know exactly how you feel and wish you well.