Hi recently diagnosed

I went for a CT scan in November 22 for possible diverticulosis, which was confirmed as being mild diverticulosis of the sigmoid colon. Incidental finding was Appendiceal neoplasm.

This was followed up a week later with a focused ultrasound. Decision was to remove appendix and hopefully be the end of it but was warned if complications then i would need referral to basingstoke.

Surgeon wanted to operate the following week but due to mild COPD I had to attend surgery school and be seen at respiratory clinic for assessment all done just after Christmas.

Turned out no problem with COPD so could have had surgery 1st week of December after all.

Surgery to remove appendix by  laparoscopy was scheduled for 18th January 23. Spoke to surgeon an hour before being taken to theatre and asked if cancer had spread would he be able to see it and was assured that he wasn't expecting any problems, whip it out have a cup of tea and sandwich then home.

I came round to be informed that he hadn't taken the appendix out and that it was not my main problem. He had found some hard masses outside my appendix as well as my ovary. He had taken biopsies and did tumor marker blood test. I was referred for an urgent MRI and this was done 6th February. 

The surgeon sent the referral to Tom Cecil on 1st February. In the letter prior to MRI and it is says,

Diagnosis Metastatic appendix adenocarcinoma 

Investigations and results 

CT Colon-thickened appendix suspicious for Malignancy

Peritoneal biopsies- signet ring cells with extravasated mucin     

Tumor markers- NAD

On laparoscopy it was apparent that there was a single quadrant Peritoneal disease focused in the pelvis. Biopsies revealed the above histology notably from a sigmoid epiploica and so MRI arranged to further stage the disease. 

No small bowel or upper abdominal/ liver involvement was visible during the procedure and the appendix is lying in a retrocaecal position 

Request for input into recommended course of action as suspect removal of appendix will require a right hemicolectomy. 

I am currently downing Moviprep ready for a colonoscopy tomorrow. 

I have my 1st appointment with Mr Cecil on 29th March.Hoping to receive a full and clear explanation of what I have, what the prognosis is and plan for treatment. 

I only know what I have seen in the copy of the letter to basingstoke.

Being left in the dark has not been helpful with only Google for information up until now as getting information out of the associate nurse specialist has been like getting blood from a stone. 

Well that's my story so far

65 year old woman living in the south coast of England