Recently diagnosed with PMP

Hi all, 

I just joined this group tonight (6 Feb 2022).

I am 66 years old, retired, married with 2 children a daughter who is a chartered biologist and editor at a pharmaceutical publishing company and a son who was born with Spina Bifida and hydrocephalus who has a few more medical issues on top.

I was diagnosed with PMP on 14th Jan 2022 and am now under one of the Basingstoke specialists.

I had pains in my right side (appendix?) on Sunday 2nd Jan and called my GP surgery where an answerphone told me to call NHS111 during out of hours, so I called 111 and when 111 said it would be about 45 mins till I could speak to someone, I decided to go online to NHS111 and answer the online questions. The results on this indicated I needed to seek medical help so I clicked on the call back feature, this was early afternoon. I got a call at 23:30 hrs from an admin to tell me that a clinical person would call within 12 hours.

Monday 3rd I decided around 10am I would take myself off to my local A&E having not had a call, the clinical call came about 2:30 pm on the Monday after I had seen a few doctors at A&E.

As they couldn’t get the bloods they wanted from me I ended up being sent home having been told I would be called back on Tuesday for further tests and follow up.

About 9:30am I got a call asking me to go in and report to a specific ward for the further tests etc. Where a wonderful young MEA? trained nurse had no issue getting my bloods and then I got sent for a CT with dye. Following this I was admitted for further investigation e.g. key hole surgery for my enlarged appendix, I was told later that Tuesday evening.

Wednesday I had the procedure and I was told Thursday morning that they had not removed my appendix, as was originally suggested/Implied, and they now suspected PMP and that they had taken a biopsy (I later found out of the Omentum) and could only be confirmed after the pathology reports were back which could take 3 weeks. They did show me some photos of what they found which I quickly snapped on my smartphone.

i was on intravenous antibiotics after the key hole surgery. Once my bloods were OK (the markers I have now read about) I was allowed to go home. However prior to discharge they had arranged for me to speak with the specialist cancer nurse team. Rather shocked having heard all this.

i have now seen one of the Basingstoke team, had a colonoscopy at his request at my local hospital and three vaccinations as I am going to need cytoreductive surgery and HIPEC, date TBA, hopefully soon, as I have 4 quadrant PMP.

Just a quick summary of my year to date. LOL.