Hello.

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Hello. I'm new to all this as diagnosed with pc on 23/12/2025 in time for Xmas and told it was advanced in January and given a few other scares after scans. On a duplet treatment of Enzalutamide and Decapeptyl which has dropped my PSA down to 0.2 from 33.9. Side effects so far are turning 'menopausal' with the hot flushes, some mood swings, a rather frustrating restless leg syndrome and fatigue. I'd be grateful for any pointers I can be given as a newby.

  • Hello  

    A warm welcome to the club you didn't want to join. and i am so sorry to find you here, having said that this is a great bunch of people.

    I will start you off with a couple of "pointers"

    * Do you have a prescription for Calcium and Vitamin D tablets? Hormone Therapy can weaken your bone structure so these are good at being preventive.

    * Fatigue - Do as much exercise as you can, walking and gym work to keep up your muscle strength - Pure Gym offer free 12 months membership if you have advanced prostate cancer.

    * I had bad hot sweats at the start of my journey - I take Sage Tablets (Menoforce) and they have stopped completely although they don't work for everyone.

    There's 3 for you - i am sure others will be along with advice.

    Kind regards - Brian.

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  • Thanks. Still negotiating my intake of tablets, etc.. Am on Tamsulosin, Omeprazole and Pravastatin at the moment but am having a face to face with my Oncologist in a couple of weeks and I'm compiling a list of questions for him. I've started eating more cereals for the calcium in the milk as a first step dietary intake with the worries about osteoporosis. I get out walking quite regularly planning my routes with the availability of toilets (which are sometimes in the pub when I'm thirsty) and convenient bushes.

    I have a local Cancer Charity, Force, who I am now registered with and I believe I can get some exercise advice and plans from them with their inhouse physios including gym based activity and that's on my list to explore. They've already offered me some complementary treatments and I've had a counselling assessment with them. It's a lovely place on the edge of the hospital grounds and sometimes I can just pop in for some tea and biccys and a chill indoors or in their lovely courtyard garden with no pressure. It's a little sanctuary a couple of minutes from the hospital Oncology department without going out on the main road.

  • Hello  

    Thank you for the reply. You are pretty much up to speed with your journey and indeed it sounds like you have a great oncology team looking after you.

    I am aware of the "Force" charity and even though I live in the "grim North West" amongst the "dark satanic mills" am aware you live in a lovely part of the country. Our local hospital has a "Maggie's" which is another cancer charity where you can just drop in and have a brew and a chat - away from the main hospital complex.

    I thank you for adding some additional details to your profile, I hope you receive some good news regarding the other "issues" you are having.

    Feel free to ask any questions, as i said we are a great bunch on here and nothing is too trivial or silly.

    Best wishes - Brian.

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    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.