Side effects of treatment

Hi Mrfe7aa87

 I am on Darolutamide (plus Zoladex implant) and have found that I too get a runny nose for some periods of time, but not necessarily clogged up as in a cold.  I also have very tiny nose bleeds from time to time.  The has occurred at the same time as I have been having chemo so not easy to put a direct cause on it - but it is still around (slightly) since finishing chemo nearly three weeks ago.

I have been on hormone therapy (Zoladex, 12 weekly) for 2 years.

There have been no cold-like symptoms, apart from when I have actually had a cold.

The wave of exhaustion I can totally sympathise with.

Most days the fatigue is there, but not a problem. Sometimes, though, I just have no option but to have a nap. This comes on most often at or around lunchtime, so I treat myself a siesta.

As mentioned, most days' life is normal, but there are one or two, in no particular pattern other than the time of the day, where further rest has to be taken to keep going. Boredom does seem to have something to do with it. If my mind is focussed on something I have no problems keeping going. If I am bored, my brain just clocks off.

This hasn't changed much over time, but, frankly, it doesn't stop me getting on with life.

Hi I have really upped the exercise rate, plenty of walks, indoor bike plus resistance work.

i have just been to my second Yoga session ( a gentle and kind version) and have also just started at a gym!  I feel tired !!!! But it is doing my mental and physical health a power of good. Time will tell.

The gym membership was via Pure Gym and their support of Prostate patients, free for a year.  Think Sir Chris Hoy and Imperial Cancer Research are involved in the programme but I cannot remember how I got there!! 

All the best

KrisPy

Hello KrisPy 

Here's the link you need for free Pure Gym membership:

Pure Gym - Prostate Cancer - Free Membership.

Thanks for bring this up - we had a thread on it when it was first announced.

Best wishes - Brian.

Thanks Millibob!  

Brain fog at work and no idea how I got there - but I enjoyed my session yesterday.

The Gym Manager seemed a bit taken aback when I mentioned the programme but did say she recalled having a couple of chaps last year.

 Perhaps we need to give it another boost?  And this link is really helpful for that - I will keep mentioning it when I get the opportunity.  I only applied a few weeks back so it is still live!

I want to get a bit fitter so that I can do the Tour de 4 (indoor bike) in September.....but we will see what happens.

cheers

KrisPy

I got the free membership in January so should be still available 

Siestas are the new norm but have to listen to your body I guess 

My side effects after 6 months are not to bad. BUT has anyone else experienced feet problems. Since starting ADT in particular Relugolix tablets after 3 months I can feel numbness, Hot feeling and skin irritation especially in bed while sleeping which wakes me up. Had circulation checked and OK. Nuropathy has also been checked and ruled out.

No swelling and from the outside my plates of meat look normal apart from a couple small bunions which occasionaly flair up for a couple of days. SO had all the normal checks and only leaves ADT as my prime suspect.

Just wondered if anyone else has this problem with ADT treatment. 

I do have those symptoms, but they originate from an unrelated problem in my back.

If you have back problems they may be a source of difficulty to be investigated.

I was on prostap for the first 3 months and had constant nose conjestion especially on the left nostral. This happened each night. I changed to tablet form Relugolix for other reasons (much faster testostarone recovery being one). 

Anyway my nose conjestion disappeared almost over night.

You can't start the Relogolix tablets until you are due your next ADT treatment. Worth thinking about.