Hello there - newly diagnosed!

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Hi all,

I guess we are all here for the same reason, recently diagnosed, scared, confused and looking support from others in the same position!!

My bio:  

Age 52, PSA tests in Jan and Feb were 9.42 ng/mL and 9.67 ng/mL respectively.  Then had a MRI which showed 2 lesions PI-RADS 4 and then upgraded to PI-RADS 5 at MDT. MRI measured PSA Density 0.58 mg/mL/cc

Transperineal prostate biopsy identified: 

  • Adenocarcinoma
  • Gleason score 3+4 
  • Grade Group 2
  • 70% tissue involvement
  • Cribriform present
  • Main Lesion 15mm
  • Staging T2c N0 Mx

Was on placed on critical cancer pathway 28th January 2026.  MRI was on 9th February and a Biopsy on 22nd April.  I was given my biopsy results on 15th May.

I have an appointment with a surgeon on 16th June.  I expect that my treatment plan will be surgery first, then see what final pathology identifies.  

Anyway, I am happy to have found this forum and look forward to discussing all things prostate with you all!!  

Neil.

  • Hello Neil ( 

    A warm welcome to the group although I am sorry to find you joining us.

    Everything has been sorted pretty quickly for you. The presence of cribriform pattern shows the cancer can be an aggressive cancer and the main lesion is quite large. Two things come to mind

    * Have you not been offered a bone scan?

    * Whilst you have a meeting with a surgeon, your case should go to an MDT meeting to decide the best treatment plan for you. You don't have to accept the treatment offered by the MDT meeting and I would at least want to speak with an oncologist to check if other treatments are suitable before the surgeon gets busy with his knife.

    All treatments come with side effects and you should discuss these with any partner too.

    Do ask questions, there's a wealth of lived experience on the group and you will get answers.

    Best wishes - Brian.

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  • Hi  

    Many thanks for your quick reply.  NO, I haven't been offered an Oncologist or a bone scan as yet.  After reading some of the posts here, it is on my list to contact my key worker tomorrow and find out what the options are!!

  • Welcome sadly  ,

    You are a very young lad to be found with this couple’s disease. If you are married or have a partner this will effect them as much as you.

    Be patient, the cancer is slow growing.

    Be brave and positive, that’s as good as medicine.

    Take care and ask questions, there’s nothing to silly.