New diagnosis

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I have just been diagnosed with prostate cancer, I have looked at various treatments and been told that radiotherapy is not advised due to me being 50 and secondary cancers, I was offered hi-fu but due to my cancer being all over that is not an option, I saw on one of the forums surveillance but this option wasnt given to me or anything else, I have been told surgery is my only real option but I am worried about after the surgery all the side effects, and I have spoken to someone who has had the surgery and his side effects and it really worries me that I will get the same 

  • Hi Stevo1 and welcome 

    It sounds like you have seen a surgeon where they will obviously put surgery forward first.

    Do u have any figures IE. Last few PSA, Gleeson, what does MRI say

    Yes surgery can Def give side effects although not everyone has them.

    Best wishes 

    Steve 

  • Hello Steve ( 

    A warm welcome to the group although I am so sorry to find you joining us. I think we need a little bit more information from you before we can help.

    due to my cancer being all over

    Is this your prostate cancer or your other cancers? If it's prostate cancer it would surely rule surgery out. I think you need to let us have details of your other comorbidities along with your TNM score from the biopsy.

    Best wishes - Brian.

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  • Yes, I agree.  Seen the urologist and surgeon combo, but needs a long discussion with an oncologist to balance the equation.  AW

  • Hi thank you for the welcome and responses, so my gleasonscore was 3+4=7, my psi was 10.2, I believe the issue is its the same both sides 

  • Hi thank you for the welcome my gleeson score is 3+4=7 and psa10.2 I think the problem is its both sides

  • Hello Steve ( 

    Thank you for your reply.

    Before the surgeon gets his knife out I would ask to speak to an oncologist. Radiotherapy has come on in leaps and bounds in the last few years and the latest machines are very accurate. There's also another option that may be open to you - Brachytherapy - you need to ask the oncologist about this.

    You have time to consider your options with a low(ish) PSA and Gleason Score.

    Best wishes - Brian.

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  • They ruled out radiotherapy due to my age as said in 15-20years there is a high risk of secondary cancer, they ruled out hifu but haven't mentioned  Brachytherapy not sure if that will be the same as hifu and they do one side as they said thats the issue, thanks I will see if I can book an appointment 

  • So nothing big by the looks of it , perhaps consider Active surveillance 

    Not sure about their argument that you are too young and other cancers could appear later.

    Steve 

  • Hi  

     brachytherapy is delivered wholly within the gland (low dose seeds or high dose temporary rods), and so doesn’t spill into other organs. Judging by your statistics so far, you look very suitable for that as a mono therapy.  I would ask your consultant.  If they don’t do it at your hospital, you could ask for a referral to a NHS centre of excellence.  My brachytherapy part of a more aggressive “boost” treatment (more than you should need) was done  and dusted in a couple of visits.  

    Brachytherapy involves insertion of mildly radioactive seeds into the prostate. This creates a very localised radiation cloud around the gland which kills prostate cancer cells whilst minimising the effects on tissue around. Using high precision ultrasound technology and software, it reduces the side-effects of treatment to the minimum. The procedure is performed as a daycase and mono therapy outcomes for low-risk prostate cancer are comparable to other standard treatments

    AW 

  • I was just trying to look up the actual incidence of secondary cancer due to radiotherapy.

    Rounding the figures up, it would appear that the risk rate is about 10% at or after 10 years.

    So, for those of us who are older, not a significant risk.

    But then, even at your age, 10 - 20 years is a good period.

    You have prostate cancer now, and the above risk may not be enough to rule out an effective treatment.

    In my case, the tumour was small, but in both sides of the gland and in the seminal vesicles, and possibly (the documentation I have does not state this as fact, but it was treated as so) in one lymph node.

    It was radiotherapy all the way, combined with hormone therapy.

    It has not been hard to deal with, and I had the risk explained to me. I had no problems with taking what I saw as a very limited future risk whilst dealing with a higher risk now.


    Steve

    Changed, but not diminished.