Good evening
I am coming to the whole Community thing a little late in the process having been diagnosed last September 2025. I will update the profile as I have seen that referenced many times in the threads, bear with me (after all I am new to this).
Essentially asymptomatic I asked for a PSA whilst attending GP for another issue (abdominal upsets). Glad I did as PSA came back as 953 which really started the alarm bells going. CT and Bone scans followed together with biopsy rather rapidly and advanced PC confirmed (T3 N1 M1A Gleason 4+5, Grade group 5 )
Am on Zoladex every 12 weeks, now on Darolutamide plus Prednisolone daily and have just had cycle 5 of Chemo (Docetaxel) today ( and am still feeling a little bit wired after the meds today hence the typing!!!). My consultant dropped into the last conversation that we would be talking aboutmRT at our next appointment in 3 weeks - a little nonplussed at this but after some research this looks like a classic Triplet approach.
I have noticed a weird effect of sun sensitivity - red face and slight swelling of face and hands - a rare thing indeed this early in the year but the weather has been so nice hasn't it! Checked side effects and buried in the notes is "increased sensitivity" , so on with the F50... All discussed with the team today.
I also talked at length about upset stomach - not sickness - and was prescribed antacids which I have had today as well as the anti-nausea stuff, so am hoping they work, as getting to sleep is made all the more difficult when sitting up (being one way to manage the upset stomach).
Fatigue is an issue - but I have found that exercise is, strangely enough, a good antidote. This involves walks, an indoor bike, resistance bands and kettle bells/dumbells . I am positive this is all helping and gives a good dopamine hit!!
Sorry if that is too much info as a newbie - but I am still full of steroids.....
I look forward to contributing to the group as I can and am able to in the near future
