Family- new diagnosis

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Hello everyone!

Not somewhere that I ever thought I would be posting.

My dad has been diagnosed with advanced prostate cancer yesterday with metastasis to his pelvis and ribs. His Gleason score is 5+5=10 and all 35 of his biopsy sites were positive of prostate cancer.

He is commencing his hormone tablets today (forgive me, I cannot remember which tablet this is) and he is due to have a monthly hormone injection.

We then have his first oncology meeting on 6th May to discuss further treatment options including radiotherapy and chemotherapy.

His only symptom was increased frequency and urgency to urinate. No other symptoms, no pain, and only since starting investigations did he begin to urinate in the night.

I would be so grateful for any advice or stories or just any support, anything that anyone else found helpful about what our journey is about to be.

Thank you

  • hi sorry that your having to post this news. there will be several people along shorty with advice. but if you click on my profile (the little chair thingy) that may give you some idea of whats possibly ahead . regards dale

  • Hello  

    A warm welcome to the online Community - although I am so sorry to find you joining us.

    Any treatment for Prostate Cancer comes with side effects - some people get away lightly and get very few, some of us get all of them, so I would urge dad to keep as fit as possible and to ensure he's on a decent diet.

    With a Gleason 10 score and spread to his pelvis it's very likely that his Oncologist will start him off on "Triplet therapy" (indeed  has just posted ahead of me and details of this treatment are in his profile ).

    As a group we are all here for you and your dad - please feel free to ask any questions - nothing is too trivial.

    Best wishes - Brian.

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  • Hi  , new drugs and treatments are coming along all the time.  When I started 9 years ago, triplet therapy wasn’t around so I went straight to chemo and RT.  Now those treatments are in reserve for years down the line.  The key to coping with this illness seems to be quality of life.  Some of the treatments and drugs aren't good, but overall life is good.  Please come back if you have any questions.

    Best wishes, David

    Please remember that I am not medically trained and the above are my personal views.

  • Hello ,

    I'm very sorry to hear about your dad's diagnosis. Do try not to worry too much (difficult I know!) as there are many excellent and successful treatments for this.

    Others have mentioned to prospect of triplet therapy so I thought I'd send you the link (below) to my blog documenting my experience of having this treatment and the follow up.

    Perhaps not something to waste your time just yet as you'll have plenty to think about, but it's there to read if he does embark on this treatment.

    All the best,

    Derek.

    Made in 1956. Tested to destruction.

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  • Hello Dale,

    Thankyou for your comment, seeing your journey on your profile has made things clearer as to what we can expect. Wishing you good luck for your further hormone therapy 

  • Thankyou David, I’m glad to hear that overall life is good, that is very reassuring to hear especially 9 years into your diagnosis. Do you have any tips on how you’ve maintained your quality of your life?