Hello. Newbie, just joined. Will read some topics before commenting.

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Glad I found this forum.

  • Welcome and say and ask what you like. We are here to help you when you do have worries and questions.

    Until then have a look around and learn all you can.

  • This is an anonymous forum so you can stay as anonymous as you like. Good luck

  • Welcome to the Dark side of the Moon (see what I did there?)  Stuck out tongue winking eye AW

  • Hello  

    Welcome to the group although most of us are "Comfortably Numb" here (see   I know my tunes too!!Joy).

    Yes by all means have a look around. Plenty of us have our personal journey on our profile which you can read by clicking on our user name or avatar.

    Feel free to ask any questions, however trivial they may be.

    Best wishes - Brian.

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  • OK, so now I feel like a wuss.  Reading some of your profiles makes my experience look like a big fat nothingburger. It's never easy to get the Big C diagnosis, but by comparison, I've had it easy.  I've never known anyone battling cancer so I really didn't understand just how tough it could be. God bless everyone on this forum.  Again, I'm glad I found it.  A lot of good info here. I've updated my profile for my story.

    edit:  I'll have to tune back my little pity party.

  • Hello  

    Well you've not had it easy have you? Life is already tough and then cancer comes along and nothing is ever simple.

    You sound to be doing OK but as you say "something's going on". Once you get the PET Scan you will have a good idea what you are dealing with and a plan to get it sorted.

    Best wishes - Brian.

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    Strength, Courage, Faith, Hope, Defiance, VICTORY.

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  • I'm still scared shitless.  I have weird aches and pains all over.  Neck, back, feet, elbows. I feel like this crap is spreading. I'm probably just overreacting but can't help it.  I don't sleep well or eat right.  Probably just paranoid, I don't know. But it's no fun.

  • Good Morning  

    I can understand how you are feeling, but you've been through major surgery, a massive dose of radiotherapy, hormone therapy and goodness knows what else, plus you are 68 years old - things start to wear out as we get older (I am 70 so I should know!).

    I can also understand the issues with your body 3 years after radiotherapy - these things take time to show themselves. The lack of sleep - is this cause by waking in the night for a pee? The aches and pains - have you had a word with your doctor or oncology team about these?

    Your PSA is low (yes it's slowly climbing) so that's not a worry so are you able to try to exercise and eat a better diet (easy to say - not easy to do) as both these will contribute to your overall well being.

    Life with cancer sucks sometimes and old age doesn't help but with a bit of effort and some positive thinking it's amazing how you can change how you feel - even if you still ache!!

    Best wishes - Brian.

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    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.

  • You are completely normal and your pains are real pains I’m sure. Me saying don’t panic is not easy to hear or do but you must talk to someone, anyone, a councillor or family, because you will need the support. But you already have us here on the forum.

    We are here to listen and try to help and support you with any of your worries. So ask away.

    Have you got a specialist cancer nurse that you can talk to? That should help you get your messages to your oncologist and hopefully get medically sound answers that will calm you. But I’ve used two sessions with professional councillors that made me feel normal again.

    It’s hard most days not to feel desperate and bewildered with a pile of cancer worry but you have us on the forum to stand beside you with every step you go and try to lesson your fears to help you keep on the path.

    The path is yours to choose and whatever way it is we will be there. Don’t ever feel alone. And when you are desperate, call someone. Talk to someone. It will take a while to become one with your new normal.

    Good luck

  • Hi  , I think we are mostly ‘scared shitless’ with cancer and the unknown so you are not alone.  The others as always have given great advice.  I just wanted to pick up on your comment 

      I don't sleep well or eat right.

    To give yourself the best chance to fight this bugger, it is my firm belief that you need to be mentally and physically prepared.  Mentally, positive thinking won’t cure you but I am convinced it helps recovery. Physically, by eating well and exercising (within reason) will give you the best chance to get through the treatments.  
    Please let us know how you get on and ask any questions.  

    Best wishes, David

    Please remember that I am not medically trained and the above are my personal views.