New and a little nervous

Hi Ben

Yes I think they offered me treatments when they told me about biopsy results in 2013.

You don't give any staging so don't know where any tumor is but I assume contained in the gland itself.

Biopsy will come back with cancer aggressiveness hopefully with your low PSA it will be a Gleeson 6.

Easily curable so u will probably be offered surgery or RT, the choice is yours, check out side effects for each online before deciding.

Anyway looks like time on your side

Best wishes

Steve 

Hi and welcome.

I’d say that all the plans for treatment will be talked over with the results if, and this a big if, there’s no more tests to give then the full picture.

The waiting is the biggest pain.

I know that our forum champion Millibob (Brian) will give you more good information, but take a pen and paper to note anything you want to remember at any clinical meeting, and write questions you want to ask because in the heat of the meeting you will forget. But most importantly take someone with you.

You are awfully young so any treatments might include trials. These can be brilliant because you are looked after in a grade ‘A’ clinical fashion, no expense spared, this is what I found in my experience. But all the possibilities are yours to decline or accept. I’m sure there will be many choices but all our bodies are so very different and the treatments are especially focused on your body, not any one else’s. So…

Try to keep off of Dr Google.

Ask questions here where there are many very helpful and experienced members who can help, support and answer or signpost you. You are not alone.

Good luck and come back often.

PS

You can fill out in you profile page (the green armchair above and the the left of the page) as this is as anonymous and you wish you can confidently give the reader a bit more background to any answer they may be helping you with.

See you soon

Thanks Steve, Obviously Im hoping that its negative but with the PIRAD 5 i would probably take the above results at this stage

Thats helpful advise, thanks. I was going to go alone as generally thats how I tend to deal with things but guess my wife will be going through it as well.

Hello Ben (BJP7862c2a5) 

A warm welcome to our "club" from me although I am sorry to find you here.

A "PIRADS 5" score from an MRI shows a very high chance of Prostate Cancer so you need to know the TNM score from the biopsy.

Depending on the biopsy results you will either be given a choice of treatments, or your results may well be passed to am MDT Team to decide the best options for you. Whatever the plan is you don't have to make a choice of treatment at the meeting - you will have time to consider and research your options - don't rush into a choice without considering the options.

I would say it's unusual for a Consultant to deliver biopsy results and you may well be seen by a Registrar or CNS (Cancer Nurse Specialist).

I fully agree with Mr U above - make sure you have someone with you to take notes and prepare any questions you have - here's a list to help you;

Questions-to-ask-your-healthcare-team.

Keep a note of the name, telephone number and e-mail address of everyone you meet on this journey, you never know when you will need them.

Do let us know how you get on.

Best wishes - Brian.

Hi Ben think it differs how and what results are given from trust to trust , I think some will give results over the phone others insist it is done in person 

my results were discussed in a MDT then I was given the basic results which included Gleason score and T staging, I then was told to wait for separate appointments with an Oncolagist to discuss in-depth radio therapy option and a surgeon to discuss in-depth the surgery option 

The long waits for these appointments made me insist on another appointment to get more information, this was arranged with a CNS and a urologist ,

strangely none of them offered focal therapy treatments in-fact they seemed to be very much against them and there was no offer of brachytherapy 

I was offered AS  but given the changes in the tumour I am glad I turned down 

all the best and shout out if you need more support after your consultation 

Nick