Shock diagnosis after annual GP MOT

Hi Cal58 

sorry to see you in this forum but a very warm welcome as the people in here are amazing . 

my OH  aged 73 is on a palliative treatment plan as it’s in a lymph node that the oncologist won’t touch due to the side effects  . He  started on Bicalutimide then onto Prostap injections every 12 weeks and Abiraterone for as long as it works . He had radiotherapy once a week for 6 weeks . 

his side affects are :  mood swings , cries at the stop of a hat , ED, fatigue and very occasionally a hot flush . He walks every morning and goes to the gym at least three  times a week and this has helped with the fatigue .  His PSA is currently undetectable .

best wishes & hugs 

Liz & OH xx

Thanks for the info. It has been reassuring to hear other peoples journeys. We'll just have to wait and see I suppose 

Best of luck to you both

Hi cal , your OH  is  about 2 weeks ahead of me , looks like we doing the same path.On Bical and get my first injection next week , then in late October for RT, Wishing you guys all the best .

Mark.

Best wishes to you too 

Hello Cal58 

Welcome to the group although i am so sorry to find you joining us! Sounds very much like a "curative pathway"!

Side effect affect us all differently - I had all the ones in the list and some not listed (click on my name or avatar for my journey). Best advice I can give you is:

* Try and keep the OH as fit as possible (hard I know).

* Be there for him when he's feeling he's not good. Side effect creep up on you.

* Ask your team for a prescription for vitamin D and calcium tablets if he's not already on them (HT can weaken your bone structure!).

* Any questions however trivial or you need to vent we are here for you.

It's a hard journey - but remember the two words - "Curative Pathway".

I hope my ramblings help.

Best wishes - Brian.

Hi Cal 58, my husband also ha and still has the same side effects that Liz's husband has. I think the hardest to cope with is the mood swings and crying.

Hi Liz, as Richard is now just on palliative treatment, I wondered whether your OH had any pain. He is still on Prostap but the Bicalutimide didn't work. Now out of options and psa rising but we knew it was not a curative path.

However, we have now opted for palliative radiotherapy on his upper spine as he is getting quite bad pain in his neck and shoulder, so hope that will alleviate some of the discomfort.

Also wondered what his last psa was as R's was 78?

Love

G xx

Hey G Sidsmum 

hope you are both doing ok.  my OH had no pain from the PC . He had an injury years ago with a scuba tank and it actually showed up on his MRI & other scans . So we know it’s ok.  His last PSA is still undetectable which surprised the Oncologist as he didn’t think it would go as low this had been since begin Xmas. It did jump a little during his RT but nothing to worry about. 

We have a really close friend  who lives in USA  and is similar to Richard diagnosis   . The HT is  no longer working for him and the RT did help and has  no pain 

they are now going to trial him on Pluvicto  it’s expensive 

I do hope the RT helps with the pain. 

hugest hugs & let me know how things go. Liz & OH xx

Thank you. We will see how he goes with  side effects. Consultant has asked GP to sort out the Calcium & Vit D prescription. 

I agree 'curative' is a good word