Starting Hormone Therapy , here we go....

Hammer. 1 month ago

9 replies
184 subscribers
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Following on from my first post I Just recieved my Petscan results , good news is not spread to bones , but has spread to lymph nodes. [worrying]

I start Hormone therapy Weds morn. then have a face to face next week.They are talking Radiation and hornone . Hormone for 3 years., take that as a positive that im here for at least 3 years.lol. Tips / advice / questions i should ask? Obv anxiety levels high , stomach churning , but trying to stay positive.

Thanks for reading.

Mark.

David2017 1 month ago

Hi Mark (Hammer. ) locally advanced but very curable. You are bound to be in turmoil at present but that will soon settle. RT generally nothing to worry about. HT likely to cause fatigue/hot flushes but generally ok. Ask anything as you go along. You can read others bio’s (where they have completed them) by clicking on their name or avatar.

Best wishes, David

Please remember that I am not medically trained and the above are my personal views.

Hammer. 1 month ago in reply to David2017

David , thank you for your reply. so good to know others understand.

Mark

Millibob 1 month ago

Hello Mark (Hammer.)

All sounds good to me - I had 3 years Hormone Therapy along with Radiotherapy to the Prostate and Pelvic Lymph nodes - I had nearly every side effect going and some not listed but I am still here and feeling great.

You can read my journey bu clicking on my name or avatar but remember I had "other issues" along the way.

One thing you need to ask at your meeting next week is for a prescription for Calcium and Vitamin D Tablets as Hormone Therapy weakens your bone structure.

I wish you well moving forward, any questions ask away.

Best wishes - Brian.

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Hammer. 1 month ago in reply to Millibob

Thanks Brian , I will read bio

I also have a neurological condition , hopefully won't cause too many problems.

it's you veteran warriors on here that help us new boys fight the battles to come , thanks

Mark.

Hammer. 1 month ago

starting my Bicalutamide 50 mg treatment tommorow ,first face to face meeting next week,

just asking, anything I should be prepared for or will help me taking the hormones?

Glad I'm finally starting my fight back , bag of bloody nerves though...

johnam 1 month ago in reply to Hammer.

Best wishes on your new HT adventure . Just remember to ask any question even if you think it’s not relevant.

My OH has been on HT for over a year and his main issues are loss of muscle tone, some hot flushes ED, and fatigue . He walks every day and goes to the gym at least twice a week more often 3 or 4 times. He is on Prostap 12 weekly injections . Abiraterone / prednisone / Adcal/ tamusolin daily and alendronic tonic acid every Wednesday.

all the best

Liz & OH xx

Hammer. 1 month ago in reply to johnam

cheers Liz , .I will try to.get to gym as much as poss .

mark.

Millibob 1 month ago in reply to Hammer.

Hello Mark (Hammer.)

Think of it like this -

You take your first Bicalutamide tablet and that starts to work right away - the cancer is being deprived of it's food - Testosterone - Your PSA will be on it's way down from tomorrow.