Hi everyone, this my first post but I suspect that, sadly, it will not be my last.
My lovely husband is 71 and and has had urinary problems for some time but dismissed them as normal aging. Recently they have got a lot worse and I managed to persuade him to go to the doctor. He had a PSA test and a couple of days later (06/06/2025) the GP asked him to go in to see him and we were told that his PSA was 57. He admitted that he had never known a PSA of over 20 which had not turned out to be cancer so, although he has not yet been formally diagnosed that has told us that is almost certainly is. He has been put on the 2 week pathway and has a telephone consultation with the consultant tomorrow morning when I am guessing we will get some information on what tests will be the next step.
Stupidly I have been googling (although at least that is now I found this forum) and what I have read it seems that the PSA level of 57 is likely to mean that the cancer has spread. This has sent me into a complete panic; I have not shared this with my DH. I am not sure what I am looking for here but I just needed to get it off my chest really.
Thank you so much for 'listening'
Firstly, we are all here in the same boat and before you scare yourself and your LH. Patience is best at this point. So until you get some data try to calm your search for Google answers.
My two week pathway nearly three years ago was tough but wait for expert analysis.
My PSA was 90 but each body is very different and very soon you will be an expert.
The volunteers on the site are full of suggestions and comforting help so just wait a few minutes and you will be in assistance heaven.
Stay as calm as you can, stop googling, ask away here for assistance for you and your LH.
I wish you both good fortunes while you navigate the first few weeks.
Hello Dogs4me
Welcome to the group although I am so sorry to find you here. Do try and stay away from Dr Google - just use trusted sources Prostate Cancer UK, Macmillan and Cancer Research UK for your information.
The diagnosis will no doubt be by MRI scan, Bone Scan and biopsy and once you have those and get the results a plan can be sorted and your worries eased. I love the fact the 98% of men with Prostate Cancer die WITH it not OF it.
There's plenty of solid advice in this link:
FIGHTING PROSTATE CANCER - A Survival Guide by Dr Jyoti Shah
Please do keep us posted as to how your husband gets on and don't be afraid to ask any questions - however trivial.
Best wishes - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
Thank you for your response. It is much appreciated and what you have said about his PSA level not necessary meaning it has spread is very reassuring. Do you have any idea how long it usually takes for a firm diagnosis and for treatment to start please? Thanks again.
Hi , Im just also starting the journey, NHS has been superb ,My intial call from GP was 30/5 to say im being sent for cancer referal . I
had my MRI 4th june and Biopsy yesterday with results call /consultation coming in on 17th. I guess from there we will discuss my options.
The waiting is the hard part as others have said above , After reading the link Alwayshope sent me , same as Millibob sent you was much better than google ... and the fact that 98% of men with Prostate Cancer die WITH it not OF it. I too found this helped calm the nerves somewhat.
Wishing your Hubby all the best.
Think every cancer centre different but push for MRI cos that will tell u a lot, in theory a couple of weeks for MRI and biopsy a couple of weeks later although have heard in some instances of them being done the same day.
So MRI will tell u where any cancer is and biopsy will confirm that it is cancer or not and tell u aggressiveness, hopefully in the 3's and 4's
Treatment could start soon after depending which treatment u go for, normally surgery or Radiotherapy.
Best wishes anyway, come back when U have more figures/details
Steve
Hello Hammer.
I did see your initial post - but didn't respond - you did have some replies and I am on holiday and have been doing other projects for a few days - so welcome to the group from me. .
Good luck with your results - we are all here for you - we know just what you are going through at this time!!
Feel free to ask any questions - many of us have a profile you can read - just click on my name or avatar for mine - if you add to yours it's handy for us as we know just where you are with your diagnosis and progress - to do this click on the chair - top right on the home page and then "profile" and then "edit". one you have written something don't for get to press "save".
Best wishes - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
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