New, low psa but lots of bone pain and worried

Hello Yorkshire boy 

There are 215 NHS Trusts in the UK including 10 Ambulance Trusts. Every trust works it's own way, has it's own waiting lists and timescales.

I was under Manchester University Trust - Saw the Urologist one day, booked an MRI for 2 days later and my results were in the next day - but I had issues and he wanted it doing.

I would be careful if you are thinking of a private MRI as you are more than likely to end up back on the NHS waiting list to be seen once your results are in - you could check with your urology team about this.

For advice about anxiety and not sleeping I strongly advise you to contact our Support line on 0808 808 00 00 (8am to 8pm 7 days a week) They can offer plenty of help in this department as it's a fairly common issue.

Best wishes - Brian.

Hi Yorkshire boy , think Brian (Millibob ) is right. It takes as long as it takes depending on the hospital.  I initially went private and lost my place when it was suggested by the consultant to return to the NHS.  David

Hi Paul

absolutely no reason to panic yet. If you are diagnosed with prostate only cancer that hasn't metastasised then you are 95% likely to live for 5 years or more. Lets assume for now that your aches and pains are just wear and tear. I remember waiting for my bone scan and CT and it was awful as I had a lot of aches and pains beforehand. And both were clear. Please dont panic my friend as it will probably be ok. I was told mine was agressive but I am under control 2.5 years later. Get the whole body CT and bone scan, if you can, as it is as close to the dogs nuts as you will get in reassurance, Brendan

Hi David

Now that a nodule has been found its got me worried about the lumber, upper pelvis, sacrum and coccyx mri results.  Is non contrast mri good enough to be confident i dont have mets

why do they do a bone scan rather than mri?

edit: just read mri without contrast is actually a great scan to rule out bone mets as it can see bone marrow and soft tissue really well. Makes me a little better after a horrible day.

just the shoulder bone pain thats a worry now. Im praying its not spread already.

Hi Brendan 

Its knocked me for six. I was hoping that the gp may have been mistaken but after doing some research he wont be. 

i just have to pray its not cancerous or that its not neuro endocrine pc. My psa is 0.5 similarly low to yours. Low usually means agressive like yours was, but ive got bone pains too. 

i was hypersensitive last night after the news but im sure this rectum pain was worse last night. Then it got me wondering what could cause the pain and it send me down a spiral again.

just wish i could sleep as im shattered. 

Apologies to everyone if i keep updating this post, its the only thing keeping me sane. 

Hi Yorkshire boy , I think you are overthinking things, but we all do it at the start.  Take it one step at a time.  Firstly have you got cancer? Going beyond this into how aggressive or metastasised it is, or how long you have to live, just isn’t helping.  I know it is easy to say, but try and look logically at this.  A pain in the arm or rectum doesn’t imply cancer.  Yes it could be but just because you have pain doesn’t signal cancer.  Is the pain constant or worse overnight?  David

Hi david

i know im definitely getting beyond myself but i cant help it. 
the pain is sort of all over my buttocks. Its painful in my coccyx, i can actually feel the bone and its painfulbyo touch. Then there’s this internal pain that feels more inside like its coming from the rectum. It was really hurting bad last night. I generally feel all my bone pains are definitely worse at night. The rectum pain is definitely worse when sat or laid down. Could it be prostate pain as its next to rectum. 

Hi

Just checked my last 3 dre. It seems to have grown in the last 4 months, maybe aggressive?

14th october 2024 PR examination: pr normal. Prostate sulcus felt

14th January 2025 PR examination done - smooth PR sulcus felt, no pain during exam

9th May 2025 single nodular feel to posterior left lobule of prostate, rest ok

All done by 3 different GP’s 1st male, 2nd female with chaperone, 3rd male

Could it be the other 2 missed the nodule or that its growing very fast and aggressive. He stated it was singular oval and around 3mm to 4mm and drew it on page like a tiny pip shape. I felt no pain at all with any of them. I did feel the kast GP seemed more thorough than the first 2 and was in there much longer. 

Here is what he put on my nhs app notes. Ive changed the referal numbers to xx. Theres no doubt he suspects cancer.

Note - C the Signs risk assessment:; Presentation:; Possible prostate cancer on digital rectal examination (DRE); Tool outcomes:; Urology referral; xxxxxxxxxxx - On rectal examination of prostate abnormality detected (finding)

Letter - Clinical Letter to Suspected Prostate Cancer - SYB fast track referral

Coded entry - Cancer safety netting (xxxxx)

Coded entry - Fast track referral for suspected urological cancer (xxxxx)

Coded entry - Suspected prostate cancer (xxxxx)

Hi Mate

just try and be calm as there is no diagnosis yet. PC is among the top 3 cancers to survive from. Although you have pains in lots of places it by no means anything has spread. Anyone who has had investigation for PC or any cancer have all had to go through the scans and waiting for results. There is no way of speeding this up as it takes time to analyse the results. All I can say is try to stop worrying and try and presume you will be ok. There is no other advice any of us can give you. Be optimistic! My best mate has Oesophageal cancer spread to his pelvic lymph nodes. Now that's a real death sentence