I must confess, I was incredibly relieved (after travelling daily to Hospital appointments for Radiotherapy sessions) - when they finally ended! Not a single appointment attended was "on time" - and on average, I spent between 3 - 6 hours round trip from leaving my house and returning. I was absolutely exhausted after the final session after weeks of uncertainty and Radiotherapy!
I am still undergoing Hormone Therapy (and will need to for a few years to come, apparently!) - but I am wondering if the symptoms I am experiencing are "unusual" or if others have experienced/encountered similar things after Radiotherapy?
(A) An increased urgency and sensation to go and have a pee;
(B) An increase in Diarrhoea;
(C) Stiffening and increased pain in shoulder, neck and knee joints;
(D) Inflation of stomach/belly and chest area, despite eating very little;
(E) Soreness and pain in nipple area of the chest;
(F) Increase in Episcleritis, soreness and reddening of the eyes (for which I am taking steroid eyedrops from my local Eye Hosptial).
I am hoping there is nothing untoward occurring in my biology. I am simply grateful to be alive and grateful I am not a Horse - as I would have been "put down" by now! I am wondering if there are any other "side effects" others have experienced after Radiotherapy, so I can "keep an eye out" for them...
Many thanks in advance for your time and feedback!
Good Morning Seeking Clear Horizons
Well done for completing your RT - you will find life very strange now as appointments and hospital visits are much less frequent.
A & B - Yes I had both - mine cleared up during radiotherapy - but they are two normal reactions.
C - F - I agree with Alwayshope are all connected to the Hormone therapy - if you are worried about any of them contact your team or ring 111 for advice.
I am like you
I am simply grateful to be alive
and would go through the entire journey again if I had to - it's a small sacrifice to pay.
Best wishes - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
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Hi !
I think all the wonderful people who have written in your thread have summirized very well side effects of hormone therapy and radiation.
Most side effects of radiation is short term and goes away. Hormone therapy and side effects is a whole other game. Normally it’s fatigue, hot flushes, low libido and etc. Most side effects from hormone therapy can be mitigated with lots of working out; cardio, strength training, well actually everything is of help. The diet is also extremely important.
There is also one other important area to rehab and it comes with erectile function. When on HT a very big group stuffers from loss of libido and that may mean that it effects the erectile function. Also with radiation ED can develop over time so with penile rehab, always think of ’ use it or loose it’
I think that, when a person is to have prostatectomy the discussions regarding penile rehab is ’standard’ but I don’t think it’s that standard with penile rehab after radiation and when on hormone therapy. But, it’s extremelily important to think of it because if not you can suffer different degress of erectile dysfunction both short term and long term So penile rehab with:
PDE5 Inhibitors (Tadalafil (daily), Sildenafil and etc) and doing ’workout’ with a penile pump; e.g. ’Use it or loose it’
But lots of good advices from the people in this community as usual and good luck to you as well fighting the cancer beast 
Best wishes - Ulf
Hi !
As having been on the treatment pathway for some time I personally feel that healthcare don’t talk enough of ’problems’ down the road after RT and hormone therapy; the possibility of ED and what you can do to perhaps minimize any problems down the road.
So anything I can bring up that might help on this road
Best wishes - Ulf
