Hello,
New to the forum, 49 years old, got diagnosed a year ago with with locally advanced prostate cancer gleason 4+5=9 presenting PSA 42.8.
I am on combination hormone therapy of Prostap and Abiraterone, and completed 37 radiotherapy sessions to the prostate and lymph nodes.
My main current concern is the incredible drop in fitness since starting treatment, before starting treatment I was a keen triathlete, training several hours a day, and most of my daily schedule and social circle was around training and racing. I cant do any of that now. I still train daily but at a fraction of the intensity and duration I was able to before. I am now too slow and without stamina to join any group rides I used to do. I suffer fatigue and any short run or ride exhaust me for the rest of the day. I've moved my focus to resistance training to try and combat the muscle loss of HT/ADT, I was able to retain most of the muscle mass but have gained ~6% fat in weight.
I wonder if there are people in this forum who did competition level sports up until diagnosis, and how they are coping with the treatment effects.
Thanks everyone
G
Hi
The loss of fitness/stamina was the worst, and longest lasting, of the side effects I encountered. I have also gained weight.
Whilst it's fair to say, it sounds like my fitness levels prior to PC, were not as high as yours, I struggled to walk 100 metres at one point. I kept being told, the HT takes as long to get out of my system, as I was on it which - was 2 years. I was still struggling after 3. In fact it was getting worse.
My GP decided to do a blood test. The results indicated I was anaemic- although he was surprised I could notice it. A course of iron tablets seem to have done the trick although the jury is still out. Anemia, I believe, is a side effect rarely discussed.
It sounds like you are still on HT, so feel you will struggle to get back to full fitness, for a while yet. Others, of course, may take a different view.
It's good you are trying to get your fitness back, but don't be too despondent about things not yet being back to normal.
Regards
Stuart
Hi L1m and welcome to the forum. One of the side effects of Prostap can be Type 2 diabetes. Many health professionals aren't aware of this so it might be worth asking your GP for an HbA1C blood test.
Hi Seamus
Forgot that - Type 2 got me as well!
Regards
Stuart
Hi L1m.
Good morning and welcome to the prostate cancer family it's great to meet you today.
Yes since I was put on to HT last June 2023 as my PSA was 1000+.
The PSA now stands at 0.9 and I have got my next appointment with my consultant in a few weeks time so hopefully things haven't changed to much
I currently have to be very careful with my daily work as the "fatigue" does cripple me.
I have to manage what I do day to day taking regular breaks & also listen to my body otherwise I will be in big trouble!!!!
I do hope that many of our members will be in touch with some help and advice to help with your current situation!!!!!
Prostate Worrier.
Fitness and hormone therapy can be quite a game-changer. I've been on this journey myself, and let me tell you, combining both has worked wonders. Hormone therapy can balance things out, making your workouts more effective and recovery faster. It's like supporting your body to push through those tough sessions. I found some great routines and tips on www.exercise.com . They have a lot of resources that helped me tailor my workouts to my needs. It's not just about lifting weights or running; it's about finding what works for your body. Plus, the community there is super supportive, which makes a big difference. Give it a shot, and you might find that sweet spot where everything clicks. It's worth exploring if you're looking to optimize your fitness journey.
Hi Serahman , that's really interesting, so far (I'm 10 month into HT) my experience has been very different. I cant train to the same duration or intensity as before and the drop in fitness was dramatic. I notice you're a member of breast cancer forum, are you looking at this from a male or female perspective?
Hi G,
my OH aged 72 started Prostap 25th June and Abiraterone 19th July his presenting PSE was 14 and as of this week it’s down to 3.1. He has and still is an avid walker with intermittent running doing normally around 10 miles a day sometimes more . He has no other side effects other than fatigue and his words are . “ this is my time to kick PC” He currently takes his Aberaterone on rising but missing his morning banana as he feels this gives him energy.
Liz & OH X
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