My husband's prostate journey

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Hi everyone I'm new to this page so please excuse me if I ramble on, my hubby was diagnosed DLBCL 2 yrs ago, he went into full remission last summer we were absolutely and looking forward to getting back to normal we had just gotten over that when he was diagnosed with prostate cancer, so at end of January this year he had his op, he recovered well, no problems etc.  He was back for his check up today, his PSA is through the roof so it seems he has cancer somewhere in his body, we are both devastated, so it's back to waiting on scans etc.  My head is fit to burst, I'm trying to be very brave for him, but I just want to howl at the moon, he is very matter of fact about everything, so fingers crossed for him for his upcoming battle, thank you for listening to me

Linda

  • Morning Daphna and thank you, The BIG day for you and Jacob, I can guess how your feeling, but know you will have prepared for today so everything goes smoothly. I will have everything crossed for you both and hope treatment goes as well as we all hope it will, best wishes to you both.

    Eddie xx

  • We have to have a bit of fun

    Just realised you're not a Barry, you're a lady

    ThumbsupThumbsupSweat smileSweat smileSweat smile

  • Morning AH, that's so true and so important, I am already imagining too much and lacy bits keep popping up. Moving on, how is hubby a week after treatment and how are you doing and did you get a bread maker, take care.

    Eddie xx

  • What is it about you men and red lacy bits.

    Hubby is not experiencing any gut issues after the hammering to his abdominal lymph nodes. Mentally it has been a rollercoaster with a really bad time Saturday afternoon but he has bounced up again for now. Nausea has diminished provided I feed him little and often but he has gone off most drinks apart from water. He is still sleeping for England/ Greece but I think this is often the way the body heals itself. We just keep thinking it was worth it knowing that the cancer has been zapped.

    I made a loaf by hand yesterday using my mixer and it turned out well. I will order a breadmaker to pick up from a store when we have to go to town in a couple of weeks for a Prostate injection. The postal service in this area is virtually non existent and everyone in the village has the same address so for couriers it is a nightmare.

  • Good morning from Yorkshire.  Here's a simple question and let's hope for a simple answer.  If the PSA test measures prostate-specific antigen produced in the prostate what is a PSA test measuring now that I have had my prostate removed?  I'm on a 5 year programme to periodically measure it.  Is this a waste of time?  Can PSA be produced elsewhere in the body?  Is it a signifier of cancer if so?  OK, so it was more than one question.

  • Hi Huffies

    It's important to keep testing for PSA after the gland is removed just in case there are some bits left over, possibly just outside where the gland was or elsewhere.

    Reading should be zero or very near and stay that way, 

    After a year you can relax a bit assuming PSA not moved up.

    PSA not produced elsewhere in the body.

    If you have any stats that would help

    Best wishes 

    Steve 

  • Hi  .

    Grundo has beaten me to it. All I will add is that if the PSA starts to rise then the normal criteria for further investigation is when the level goes above 0.2, at which point salvage radiotherapy is usually offered. There is a very sensitive scan available called a PSMA PET CT scan which can detect very low levels of PSA produced by the prostate cancer cells anywhere in the body. These cells can lay dormant in bones and lymph nodes in particular, then suddenly decide to multiply at a later date. The Gleason score is usually an indicator of how likely this is to happen.

  • Hi Grundo Steve, PSA is also produced, in very small amounts, by the salivary and urethral glands, though their impact on results are negligible,

    Eddie