Erectile dysfunction

Hi we are 3 years post op . Unfortunately no initial ED help given I.e.  pump or meds.  When we enquired tablets perscribed but didn't work and gave hubby horrendous headaches.  Referred to ED specialist and given cavaject .  2.5 ml didn't work and a higher dose resulted in erections lasting over 2 hours and being quite uncomfortable.  The injections were not painful but the whole thing was very mechanical if you see what I mean but it did work.  Now trying sildenafol and whilst getting some response and heightened sensation erection not enough for intercourse.  Looking at comments maybe should have tried pump and ring.   Now facing HT and RT so ED on the back burner for now.   Good luck 

Hi, sounds a step forward. The trouble with the pump and rings is your stuck to a 30 minute window else it can cause damage. Also hinge effect is restricting for intercourse. 
I think I will take this up with the RD nurse after Christmas. 
Thanks for your comments

Hi Sarah,

I'm really sorry to hear about Paul's struggle. Erectile dysfunction after prostate cancer treatment can be incredibly tough, and I completely understand how difficult this situation can be. I deal with ED myself, so I know firsthand how frustrating and disheartening it can feel.

There are several treatment options beyond oral medications, like Caverject (alprostadil injection), which can be very effective despite initial hesitation about injections. Vacuum erection devices are another non-invasive option that helps by drawing blood into the penis. Penile implants, while requiring surgery, offer a more permanent solution.

However, what has worked best for me is Cialis (tadalafil). It’s incredibly effective, providing a more natural and long-lasting response compared to other medications. I always order it from this pharmacy: delivery-service24.com/buy-cialis-uk.html, and my experience has been great—fast delivery and reliable results every time. Cialis works by increasing blood flow and allowing for spontaneous, natural-feeling intimacy, which has made a huge difference for me. I’d definitely suggest looking into it as an option for Paul.

Wishing you both the best! 

Neither Sildenafil nor the pump is working for me. I’ve been recommended to consider the injections, just waiting to be taught the procedure, and a cream injected into the urethra. Was told this last could be painful. Does anyone have any thoughts or possible alternatives, especially if externally applied and not to painful. Living in hope!

Hi like yourself I have tried most things for my ED and unfortunately nothing seems To work 

when I used the cream it made my penis sore for a few hours after using it and I didn’t get an erection so was a waste of time 

currently using caverject 40mcg and not as bad as I thought it would be be injecting in my penis and unfortunately still not getting erection good enough for intercourse back to hospital in a few weeks to see what happens next

The cream (Vitaros) is also Alprostadil based, as is MUSE, a urethral pellet version. They can be very difficult to obtain. Invicorp is an injection which uses different drugs, and can work when Alprostadil doesn't or if you find Alprostadil painful afterwards (which some people do).

The pump can't really fail to work, at least to get an erection, but you should ask to attend a pump clinic where they offer to demonstrate it on you - this doubles the chances of using it successfully at home afterwards. Not everyone find it satisfactory for sex, but you should be using it regularly for penile rehab.

I have had an Artificial Urinary Sphincter fitted and the control buttons are located in the scrotum.  I'm petrified about de-activating it by use of the pump!!

It would be worth asking your AUS urologist and the pump company if there are any special considerations.

Helo Sarah, I’ve been reading your message and thought it would be useful to share our experience with the injections…

 Following my husbands RALP in June 2021 he also suffered with ED and was prescribed Caverject. Initially we were very nervous of using the injections…..who wouldn’t be! However the results were worth it. Actually using the injections takes a bit of getting used to and when they were first prescribed it took a few attempts to get the dose right but we worked with our specialist nurse who would advise us how to increase the dose each time we used it until we got the desired effect!
I would suggest you try it as we’ve found it’s well worth persevering.

Good luck!