New, husband just diagnosed

Great, just let me know and I we'll work round your dates. G

Hi sorry I was scrolling and hit flagged to moderator by accident not sure how to undo it. My  chipolta heavy fingers. Sorry again if causes problems xx

No Idea, but interesting question, I would of thought there would be some sort of overlap anyway rather than the treatment completely stopping and then restarting at the end of the cycle, that makes more sense to me. I hope someone answers this that knows. 

L

Hi OW

How funny that's what used to happen to me. One scan, however, was in a different room. Nurses went out of one door, I catnapped, then the machine did its thing. Next, a hand rested on my shoulder, from behind. I nearly went through the ceiling. There was another door behind me so I didn't see them come back in!

Regards

Stuart

Yes, definitely. Bon voyage!

Oh, ha ha, I was corrected by them in something I had written which apparently may have been sexist!!  

Thank you for your encouragement. It’s very stressful, the waiting, he has his first injection  on Monday and a full bone scan on Tuesday next week.  I have felt hopeless as his PSA was 220 and it would seem that seems bad. The waiting is the worst part, husband very emotional.

linda 

The injections will bring it down, my husband now has hot flushes, and has put some weight on round his middle, but as he is 84 he can’t exercise as a younger man can. Once you get the results of the scan then it is easier to deal with things, hopefully it will be clear.

Hi Linda - It's not hopeless, I know it's stressful but he's now on his journey to recovery. My PSA on diagnosis was 182 and at the last test it was below 2 and that was before the Radiotherapy.

It's easy for me to say but he's had his first hormone injection and that will be working now to reduce the PSA and kill off the cancer cells - all the treatment has it's  positives and negatives - but he's on his way to a low PSA figure.

It's a waiting game - appointment - treatment - appointment - but it does get better. The thing about us men is we think we are invincible and we aren't so he will need your support. I found that Mrs Millibob was going through the emotions with me and she along with the community on here helped me keep my head above water.

We are all behind you - if you need anything - or even just a moan - we are here.

Best wishes

Brian.

Thank you Brian.  Really struggling to keep strong for him as he is tearful a lot of the time and feels “like my mind is unravelling” (his words).  He had his first prostap injection today and has full body bone scan tomorrow. When we were at the nurse for his injection today I asked if she knew when the next one would be and she said every 12 weeks unless oncology change it and she offered me a print out of the letter.  When I read it I discovered that it said we have informed this gentleman of the possibility of metastatic prostate cancer.  He was shocked as he said he had never been told it was possibly metastatic, in fact he had got told over the phone at work by a nurse from the hospital that he was to collect a prescription to start HT and he went to pieces and only remembers the words you have prostate cancer but does not recall anything else, probably due to the shock of the call but it was a Friday afternoon and I think they just wanted him to start the treatment as soon as possible.  We haven’t seen anyone yet other than the GP who told us his PSA was 220 and he was referred urgently, then he got the call from the nurse.  I think it’s all just been such a shock and he is very emotional and not sleeping well, so exhausted too.  I also noticed on the letter they had asked him to be prescribed vitamin D and calcium but the GP had missed that but I’ve got it organised today.  Have to say I feel pretty exhausted too with it all and the waiting is awful.

Thank you for your support

Linda