Hello!

5 replies
179 subscribers
835 views

I thought I’d give this forum a try. The other forum I belonged to is like a ghost town.
Anyway, I was dx’d in November of 2017 with pc and began lupron in January 2018 then IMRT radiation (45 times) beginning in March 2018. Gleason scores were 8’s and 9’s so I was considered high risk. I discontinued lupron in late 2018 and went on a free fall, not seeing any doctors until November 2019. When I went back to the doc my psa spiked to 32 and the cancer metastasized to a rib. I started the lupron again and started zytiga in 2020 and my numbers crept up in 2022 so they switched me to Xtandi and last fall a lymph node between my lungs was biopsied and tested positive for pc.
Today my psa is over 11 and I’m beginning docetaxel on Thursday. 6 rounds, 3 weeks apart.
I was once a virile, active guy but not anymore. Having covid pretty much all of 2022 didn’t help.
Ed

Stevecam over 2 years ago

Welcome Ed, there are many good men and women in this forum. Wow, 45 sessions of Radiation!

I remember when I was virile!. Hope your docetaxel works. Let us know how it goes.

Steve (SteveCam)

BW over 2 years ago in reply to Stevecam

Hi Ed,

like Steve says “Wow, 45 sessions ! You’ve been hit hard with the drugs also, so no wonder you’ve been exhausted. It sounds like your consultant is looking after you though, please let us know how you get on with the Docetaxel. Are you taking plenty of supplements to support your body as you may be able to give yourself an extra boost that way. You must defiantly take Calcium, vit D Also a banana a day for potassium can be good. (This was all advice from my Partners consultant BTW)

Take care and keep us posted on your progress

joeven over 2 years ago

Hi Ed

Changing meds is a devil, surprised they did not give you chemo straight away, a lot of radiation is never good, unless it’s the proton beam, which hits the prostate directly.

Ive had mine for coming up to seven years now, I would be lying if I said it’s not took its toll. I was put on the stampede trial hormone, chemo, then radiotherapy hit hard and fast, my PSA went from 893 to 0.04 now climbed back up to 14 I’ve been on enzalutamide for a few years.

Still chemo will help suppress the cancer, it has different effects on different people, hopefully you will not get all the side effects, just keep posting you will get replies.

Stay safe

Joe

Nor6 over 2 years ago

Hello and welcome Ed,

I’m new to both the forum and also PC too. It’s a shame the other forum was so quiet but having just joined, people here seem really good and supportive.

Sorry to hear you have had such a rough time. I really hope things improve for you and new meds help.

Wishing you well,

Nor6

Ulls over 2 years ago in reply to Nor6

Hi guy's, sorry about late response, 45 session that's a lot, but you wouldn't be getting it if the oncologist didn't think you would benefit from it, I hope it goes well for you, and like the other guy's said keep in touch Ed.

Hi Nor6 if you could complete you profile you will get all the help the group can give you.

Take care and enjoy life to the full.

All the best Ulls

More from this forum

Hello!