My partner has T3/T4 metastatic prostrate cancer showing outside the capsule, in the seminal gland, neck of bladder and 2 lymph nodes on the abdomen . Having completed 20 sessions of radiotherapy in January he is on his 2nd hormone injection which he will have every 6 months. He was told he would see the urologist within a few months and I'm wondering what will happen at this appointment . Will he have further scans to see if the treatment had managed to maintain the spread or better still shrink it or will he just have a PSA test ? Right now he's experiencing fatigue and sweats ( not just hot flushes ) which is really affecting him . He's taking Sage but I don't know that it's doing much . I can see his anxiety increasing and just wish I could do more to help him. He's waiting to see our GP but that appointment is still 2 weeks away. It's such a worry !
Hi Our Ruby,
It’s Megan here from Macmillan’s Online Community team. I saw your post and wanted to offer some support whilst you are waiting for other group members to reply.
I’m so sorry to hear about your partner's diagnosis and what you are both going through. It’s important that you have support around you, so I am glad you have found our Online Community. It can be comforting to speak to others with similar experiences and access peer support when you need it.
Alongside posting in the Prostate cancer forum, there’s also the Family and friends forum and the Carer’s only forum that may also be useful groups for you to join. Here you can connect with others who are also supporting a loved one living with cancer.
With you having questions about what will happen when you visit the urologist, you may wish to chat with our nurses here at Macmillan. They can provide trusted information and reassurance, alongside talking through your concerns and what to expect when you attend appointments.
To get in touch with the Nurses, you can post a question in our Ask an expert section on the Community or contact the Macmillan Support Line.
The Support Line is open from 8am to 8pm every day and to get in touch, please call 0808 808 00 00. There’s also the options to send an email or use live webchat during the opening hours.
When you get in touch with the Support Line there will be options to speak to the Information Nurse Specialists and Support Advisers alongside the Money and Work teams. If you need a listening ear, then the teams are here for this too as sometimes it can be helpful to talk to someone who is there to listen.
If you have any questions about the above, or ever need any additional support, please don’t hesitate to get back in touch. You can email community@macmillan.org.uk or send a private message to the Moderator account.
Best wishes,
Megan
Macmillan's Online Community team
