Afternoon all. I thought it was time to join up.
I was diagnosed in October and have been on the hormones since. My RT starts next Tuesday for 7 weeks. My treatment so far at Colchester has been excellent.
I'm 71 and had been getting tested for years as my dad had it from about my age and died aged 77 in 1991. But that was so long ago in medical treatment terms that it's almost irrelevant.
I'll be interested to hear of your RT experiences, how it makes you feel. The hormone jabs really take it out of you. Hot flushes after any physical effort and at random other times. Do you get that weird fizzing feeling across the chest before the flush? Sluggish, forgetful, not that anyone who knows me spotted the difference.
It took me 3 goes to get through the CT scan; 1) too much wind! 2) total blockage due to enforced change of diet! 3) back to regular diet and hope for the best.
I had a TURP in early December. I had been on Mirabegron for quite a while to help me pee, although I was never aware of any real benefit, and left it off, with the agreement of my GP after the op. Then I started getting bladder spasms and peeing 20+ times a day. Thank heavens for Tena pants. Then it turns out that the cure for the spasms is Mirabegron and it works great. I still wear them when I go out, just in case, but not at night as, for some reason, the lady is not turned on by them.
Good luck chaps.
Hello Scutch and Welcome - it's the place to be even if you don't want to be here!!
Personal Experiences - these are mine and don't forget we are all different:
Hormone treatment - Not too many issues, weight gain, erectile issues, mood swings, crying for England and hot flushes (although I have cured mine by taking Sage Tablets) and my boobs have grown - thanks NHS!! - oh and itchy skin!!
Radiotherapy - No issues apart from increased need to pee and broken sleep. The one thing I would say is follow the instructions of the Radiologist to the letter. If you have a diet sheet, stick to it. Nothing that gives you wind and follow the bowl procedure.
Anything else, just ask, If you want to follow my journey, just click on the picture of the beach. If you add your statistics - Gleason score etc this also helps us to help you. They are a good crowd here!!
Good luck on your journey.
Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
Steve & Scutch - We need to start our own club - not sure what we should call it - "Fatigued, Lack of sex Drive and Skin of an 80 year old!!
The bit I found strange about the RT sessions was they went to the trouble of giving me free tattoos - thanks NHS - something else free along with the boobs, and then some of the radiologists would make black felt tip marks on my body to show where the tattoos were!!
Good luck with the remaining 18 fractions - it will soon be over!!
Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
Having no sex drive meant I never thought about what I couldn't do.
That made me cry laughing - It's so true - it must be my hormones!!
Scutch - I wasn't give a diet sheet, just told to stay off the alcohol and avoid beans, pulses and anything else like green leaf vegetables that might give me wind.
Let us know how it goes.
Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
