High PSA results

Hi Panda75  and welcome to the forum where nobody wants to be.

Firstly be reassured that Prostate Cancer is slow growing. It would be a good idea for you to go to the Prostate Cancer UK website and download the Prostate Cancer Toolkit. Here's a link:

https://shop.prostatecanceruk.org/our-publications/just-diagnosed/tool-kit

Once you have had a read come back with any questions that you might have as someone here will have been there and will be able to give you answers.

Hi Panda

Sorry to hear

The Mri will tell a lot so make sure that u get a copy of the report that comes with it. Post back here and we may be able to re assure u that not so bad. 

Plenty of treatments out there , hopefully still curable.

Best wishes

Steve

Thank you Seamus.

I'll have a good look at the link. I think the most difficult thing for me is the waiting to get the tests, the diagnosis and the prognosis. Your mind always  thinks the worst in these situations. Still hope to do a lot of living.  I have had numerous blood tests over the last 10 years and had assumed that included PSA but that's not the case. I had to go and ask for PSA because I developed an urgency to pee. I think this forum will help my mental state.

Bob

Will do. Thank you

Hi Panda,

If it is any consolation I think my husband wins the prize with a psa of 1200 at diagnosis about 18 months ago. It has spread, so incurable, but with only hormone treatment, his psa  was very swiftly down to 2.1. 

It is always the early stages and the not knowing which is the worst. As you will gather from the guys on this forum you will soon learn to live with and accept it and if you are lucky you might even be cured with the right treatments.

Fingers crossed for your scan.

Gina

Hello Gina

I thought mine was high! Thank you for your reply. Reassuring that even though it has unfortunately spread, your husband is doing well 18 months later. As you say, not knowing is the worst so hoping for a scan and report soon. All the best to you both.

Bob

Hi Bob

The waiting seems to go on and on - its just the way it is with PC.  I was diagnosed in August 2019 and didn't start RT until the December - the HT started sooner though but not until after all tests. I just took things as they came after me - after the initial shock.

Let us know your stats when you know them.

Regards

Stuart

Hi Bob - Sorry to find you in our club, and yes PC is a waiting game - either for tests, test results and treatment. As the rest of the good folk on here have said, once you get your results, stick them up and you will get lots of help and advice. I have found Mrs Millibob to be a great support and keep her updated with all my progress - she also attends meetings with me and asks questions I forget to ask.

PC affects us all in different ways and our journey is sometimes different to others even though we have the same symptoms and diagnosis - I find it helps if you keep a record of how it's going - you can see my journey by clicking on the image of Oludeniz beach.

Best Wishes - Brian.

Hello Brian

You've had a long journey but looks like you are getting on top of it. Once I know what is going on and whether there is spread outside the "walnut", we can formulate a plan. Wives carry a heavy load on our behalf but, as you say important to keep them involved as our mental capacity to take in information from doctors can be fogged by the impact of what they are telling us. 

I'll do as you suggest and keep a record. Thanks for your reply

Hope you continue to make progress.

Best Wishes

Bob

Hi Stuart

Still trying to get to grips with the initial shock. More to come after my MRI.

Regards

Bob