Stage 4 metastatic prostate cancer plus pulmonary embolism DVT and blood pressure

Hello

my bit of a muddle he is in, first radiotherapy is not that bad, it can give you belly ache, when I had it I had the runs for one day, but further down the line years that is you can get some symptoms, in my case it was radiation prostitis, but after a colonoscopy and a change in medication I’m not doing to bad.

Have they offered enzalutamide not arberaterone as that’s a bit harsh for people with some heart problems like me for instance I’m on enzalutamide. 
the Stampede when I had it was six sessions of chemo twenty sessions of radiotherapy and prostap 3 the later I’m stil on for life.

hopefully some others will jump in to.

Stay safe

Joe

Thanku so much for replying. Yes it's been very tough and mind bending. Top it he got covid a month ago and due to low white cells ended up in guys hospital having new Infusion drip treatment to help him. It was amazing treatment. Brilliant. Got rid of his covid. He and the oncologist discussed other pills, they called them ''Sister pills'' and said that he won't tolerate them?? As such bad reaction from Apalutamide xx. We get call Wednesday from queen Mary's sidcup where his got to go, I'm presuming for dates to start. S u know it's jyst so hard sometimes. But very pleased that u r getting on well x

Hi 

That’s why we are here, help where we can, although I’m coming to my 79th in a few weeks ( more like big kid og ten ) it’s been a battle over the six years, but positive thinking and helping people with information and you ladies we are so indebted to, my wife’s terrified when I just walk up the stairs, so I know what your all going through.

Great he’s over covid, I dread catching that as I have diabetes type two as well offshoot of chemo etc.

Stay safe 

Joe

Thanku both for your great reply. Wow God you r all so strong and sounds like positive thinking really does help. I'm so greatfull for your responses. Just finding it all a bit scary and so confusing. They said not curable. They Keep bloody saying it. But by quite a few I've read on here some have gone on for yearssss which is wonderful. Did panic and thought he would not have long. But feeling more positive now. S long as no more blood lots out of the blue. He should have lots more time. Was just worried about the future. I got to stop worrying xx thanku and keep keeping well xx

Hi

If you didn’t worry then your not human, the future will be a long way away, I thought the the same thing, all I said in 2016 was get through Xmas ( my favourite time of year ) and I’m still here now, ok more tired and fatigued but hope there’s a few years left.

So just lead your life as normal, go to all appointments ask questions if he’s poorly make sure you have a specialist nurses phone number. If you want a holiday then go although if abroad the insurance is sky high for your partner, it’s just carrying on.

Stay safe

Joe

Thanku. Yes we did already have holiday booked. Our friend has now taken it over. His insurance quote for 2 weeks menorca was very nearly 3 thousand pounds for 2 weeks!!!! Xx

Hi Mrs Need Help

My husband diagnosed with stage 4 with mets in the bones in November.  We thought we might have a few months.  But after starting on the treatment and reading lots of information about prostate cancer and most importantly being able to speak to people on forums like this, you realise that their is hope

You are going to be scared and very worried.  It is normal.  For the first few months hubby and I could not look at each other without bursting into tears.  I worry constantly about him.  I worry when he walks down the garden, when he picks up a hammer, when he plays his guitar.  I watch him when he's asleep.  This is all, I am beginning to realise is normal for us girlies when husbands/partners are going through this bloody awful disease.  

It will start to settle for you and you will get into your own routine.  Stay strong and stay positive for him.

Ginny

Thanku so much. Yes your right, we will adjust, its just a learning process too for us. Good luck with his treatment xx

Hello Ginny

You've described  my wife perfectly, I know I have said the same thing many times to others. One thing with my wife is, she sorts all my medications out on a daily basis, it infuriates her when we or she puts the order in and we have to go to the doctors to get them to sign the prescription off, they’ve got two ways of ordering on line both are not the best. This just adds to stress mainly on my wife’s part, she hates incompetence.

Wow soap box moment, anyway, yes some of us accept without you ladies we would be like an ostrich head in the sand, your a good person, just what the other ladies need, keep up the good work.

Stay safe

Joe

Hi Joeven

I sort out all medication for Al, (hubby).  If he goes down the garden and I can't see him or he's missing for more than 5 minutes, I go looking for him!!!  I used to like it when he did this. but not now!!  

 We are very lucky there is a chemist in our village, where I get all of his medication from.  Our cancer team gave me a prescription for all his pre chemo and after chemo meds for 6 months.  I just pop to the village when I run out of something and they just hand it over.  I have to order our degralex/firmagon injections.  I will go to chemist tomorrow and they will have it in on Wednesday, so in that regard we are very lucky.  

Hubby has a nightly injection because he has thrombosis.  We have a team of 4 nurses who are absolutely fantastic.  They take the blood tests the morning chemo is due, and by late afternoon we have an email, along with chemo team, our local doctor and the nurses themselves with the results.  

The downside of treatment in France is they will not say what happens after chemo finishes, and when we had the "very good" results from his scan last Monday they did not go into detail about it, just gave us a report.  We were OK with this as we just gave it to the nurse when she came to inject Al, and she explained everything.  But if we weren't having the nurses at home we would be a little in the dark.

Anyways enough of my ramblings, I can hear the tv has been put on in the bedroom so hubby is awake.  Time I looked in on him!!!

Ginny