Advanced prostrate cancer

Hi Asheen

I have a simular diagnosis to your partner, advanced PC mets in the lymph nodes and on my spine more in the lower spine, its good that you support him, the waiting is the worst part, but its good that his treatment has started,my diagnosis is that the cancer can not be cured but is being contained my PSA was 168 11 months ago it is now 0.01 and has been for the last 6 months, the hormone treatment will bring on other problems with the likes of hot sweats being part and parcel of the treatment, but as you quite rightly say every one is different, but at the moment there is no cure for advanced PC containment is all they can do, your MDT team will look after your partner and will do the best they can for him if you want more information and want to talk to someone Macmillan nurses are a good point of call also if you yave a local Maggies center and of cause here in the chat, we have all been through it and can point you in the right direction

Hope this helps you a little, stay safe and all the best

Chris

Hi Asheen, My husband was recently diagnosed with very similar levels to your husband. He too is on the 3 monthly hormone injection and is seeing his oncologist for the first time on 5th April but we already know his next likely treatment as his urologist told us after they had a mult team meeting. 

Hello Asheen

Like your partner I have advanced Pc, for me it is in my lower lymph nodes and upper spine. On diagnosis I was told  its incurable but to look on the poitive side as new treatments and ways of treating the cancer are coming online all the time.

I second what Chris said use Macmillan nurses, these forums and Maggie's, I especially went to Maggie's when I was having radiotherapy as it was just over the road from the radiotherapy suite and found it was a pleasent quiet place to get a coffee (free) after treatment. Ask on here any questions as there will usually be someone who has the answers.

Keith 

You certainly are. Me and and my wife go through the same ups and downs together. I'm so glad I don't have to go through this on my own and so sorry she has to share it.

My diagnosis was very similar, except my PSA was 268. Now it is 0.07. Hopefully your partner will find his PSA drops and keeps dropping as mine has done since I started treatment about 15 months ago. I have various aches and pains, I get days when I'm really tired, and other, like yesterday, when it all just gets a bit too much, but most of the time life is good. Today the sun is shining.

If your partner is suffering fatigue or hot flushes, try accupuncture. At the Marsden Dr Filschie runs an accupuncture clinic. It's helped me a lot, but maybe you're at another hospital.

Keeping up with exercise is also very helpful. The hormone treatments mean you may lose muscle and bone strength and exercise helps counter this, and more. I can't run any more because of foot pain, but I can go for long walks, and alos use free weights and a rowing machine.

My very best wishes to you both.

Hello Ashen

Sorry about what’s happening, but this is the place to get information and help. First are you able to tell us anymore about his condition ? Gleason, stage, Have you made a list of questions to ask the oncologist ?
Your like me, I want to know everything and then some. A lot of partners ( female ) come on here instead of the males, I have every admiration for you, I know we have the disease and it can get to us sometimes, even the easiest going person like myself, but without help and support from you ladies we would be in a lot worse place.

stay safe

Joe

Hi LuluF.

Goog luck to you both for the 5th April .. reason I say both is because it does effect both of you!!  I’ll be honest I am somewhat scared as to what we are going to be told on the 4th April we haven’t seen anyone else regarding Gary’s treatment since he was diagnosed on the 23rd March from the urologist & it’s such a shock I don’t think you take it all in at that time, I know we didn’t!! 
Almost 4 weeks ago but it feels so so much longer. 
Thank you taking the time to reply. I think joining this community has certainly helped me not feeling alone.

KiethA

Thank you for that information. Yes I keep telling Gary he has to fight this the hormone treatment is going to stop the C from growing! 
Stay safe

Joe.

At the moment our information is a little thin on the ground & Gary is the sort of person that does like bothering/asking questions.

We only have what we were told by the urologist ( as I put in my opening message) I will certainly have my list ready for the oncologist, I have mentioned to him about questions to ask on the 4th April but he just dismisses my idea so I’ll do a list on my own. 
Thank you for replying… really helps when there are people in the same boat so to speak! 

Dave,

Thank you for your advise the hospital is the Pilgrim at Boston Lincolnshire. With regards to side effects he seems to be ok, I must admit his muscles arms & legs aren’t so big & sometimes he looks frail in his face. 
Keep Safe 

Hi Chris,

I have suggested to Gary to make contact with the Mac nurses but he dismissed my suggestion. He has once phoned the specialist nurse once, she was sitting in with the urologist when we had the news on the 23/03/22.

Stay safe ….Thank you