New here and worried

Former Member
Former Member
  • 6 replies
  • 187 subscribers
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Hi there.

I am 63 years old and have had a regular PSA test through my GP. The last one I had in August 2021 was 3.0, up from the previous test at 2.8, so my GP booked an appointment for me to have a rectal examination of the prostate at which she said that my prostate was enlarged, but probably nothing to worry about, but to be on the safe side, she would book me an appointment with a consultant Urologist.

I got that appointment in September and he performed another rectal exam and agreed that the prostate was enlarged and sent me for an ultrasound which also showed and enlarged prostate. After that The consultant said that he would book me an MRI, just to be certain, but he didn’t think there was anything too much to worry about.

I went for the MRI and had 3 different types one with a die injected. Then I was told that my consultant would be in touch with me. I got a letter from the hospital saying that the consultant would like to book a telephone appointment, so I took the earliest I could, which was right in the middle of a weeks vacation. I sort of thought that if it was anything scary that the consultant wouldn’t tell me that over the phone, he would see me face to face.

so day of the telephone came and I remember being  at the marina in Falmouth when the call came in almost 2 hours early. The consultant told me that he had reviewed the MRI scan and he was sorry but my Pirad score was 5, as highly suspicious. I could feel myself starting to buckle. My wife was with me at the time and had been the absolute best support I could have wished for, always looking at the brighter side of things.

 I’m now waiting for an appointment for a biopsy, but reading online about Pirad scores, 5 means I have cancer and I’m frightened by the whole situation. There is so much information out there on the web and some of it is contradictory and some of it is just too complicated.

I have been reading some of the posts on here and I’m still scared and worried as there hasn’t been any incidences in my family of cancer.

Robin

  • Former Member
    Former Member

    Every one is different, take it from me, if you trust your consultation then leave the internet alone otherwise you will make yourself ill with worry, if your are diagnosed with PC then you will need all your strength and  good health to fight it, the last thing you will need is treatments to be hindered by other health complications caused by stress and worry, my best advise is to live one day at a time and build your up your health by healthy eating and exercise which I did to help me through surgery and radiotherapy.

  • Hi

    There maybe problems then there might not be, it seems the oncologist team have done everything but the biopsy, which will tell all, of course your going to be worried, when I found out, I trawled the net for every piece of information I could, joining various chat groups, this one being the best. 
    The thing about the net is so much information is out there, I’ve now limited mine to side effects of treatments and looking for new treatments, so keep an open mind about what you read.

    Hope when you’ve had your biopsy, that whatever it is, the right treatment will be forthcoming so try not to fret although that’s easy to say, you have a strong wife as you’ve said so that’s a great thing, don’t know what I’d do without mine, who is my career as well.

    Stay safe

    Joe

  • Former Member
    Former Member in reply to joeven

    Hi Joe, thank you for your kind words. It’s not easy, but I will try to look at the treatment side of things and hopefully I can have my biopsy soon and then between us all we can plan a strategy going forward.

    thanks again

  • Former Member
    Former Member in reply to Former Member

    Thanks Theodore. I think you are right. Take each day as it comes and hopefully will have my biopsy soon

  • Hi Robin.

    The important thing to stress is that, even in the event you have cancer, everything you say suggests it has been caught early, and that makes it very, very treatable.

    I will also share with you the words of the consultant who conducted my biopsy - “not every man who has a suspect MRI result and is referred for a biopsy has prostate cancer”.

    I will not deny its a scary time, but stay positive and carry on living your life until you know what’s actually going on. At that point, and only at that point, can you start to think and plan ahead.

    The very best of luck to you.

    HH

  • There is so much information out there on the web and some of it is contradictory and some of it is just too complicated

    Very true! Some of it is just plain silly, too!

    Always be sure you're reading a reliable source (not always easy)

    It's also well worth reading the 'toolkit' for general advice.

    - - -

    Heinous

    If I can't beat this, I'm going for the draw.

    Meanwhile, my priority is to live while I have the option.