Enzalutamide

Hi monk sorry to see you on this site, but a warm welcome to you. I was diagnosed in January with advanced prostate cancer, spread to lymphs and bones, put straight on to decapeptyl injections 6 monthly, and enzalutamide 4*40mg daily, I have some of the usual side effects, hot flushes, tiredness, restless legs and shoulder, as well as reduced libido, with occasional pain. All are manageable. I have completed a course of radiotherapy without problems.

I am just a few weeks of 74th birthday, with a very understanding and supportive wife, who worries about the future more than I do, at first it is a bit scarry, some tears and fears, but well over that and getting on with normal life, so all is ok.

Telling the ladies and complaining that you get hot flushes only causes laughter and the comment " now you know how we feel".

My psa is down to 0.045 I am very happy with the medication, I hope you will be aswell. Let us know how you get on, all the best.

Ulls

Hi Monk

Welcome to our club, its not good seeing new members on this site but you are in a safe place with us. I was diagnosed in April with advanced PC that has spread to the Lymph and bones in my spine like you I was given decapeptyl and have started to take Enzalutamide 

symptoms like Ulls with the addition of Odema and a itchy rash on my legs below the knee so with the pain and rash it is all controled with additional medication, so far I am happy with my chosen treatment and my PSA has come down from 168 to .87 and I have another blood test next week so I hope it goes down more, I am still employed and hope to return to work soon as it will keep me busy there are only so many box sets you can put up with.

I hope you will be ok with the treatment and will not get many side effects I wish you all the very best

Chris

Hi Chris, that is a great drop in your PSA long may it continue, I have not given up work just changed my boss from the managing director to my wife , all the best Ulls

Hi Ulls Thanks my friend hang on in there, play nice unless you like cold dinners

Regards

Chris

Thanks Chris and Ulls. I’m just getting started on the Enzalutamide tabs, so early days. 

Hi

I'am on enzalutamide, we all say treatments affect people in different ways, in my case, I’am very tired and fatigued a lot of the time, also my joints ache and there’s the feeling of not remembering properly, like one step forward and two back, I’am not saying this will happen to you, just how it affects me. When I started on them I was on four tablets which knocked me for six with my other medication so started again on two now on three may move up to four, after blood test tomorrow.

Its hard for us but fighting this thing is better than the final outcome.

Stay safe

Joe