Great site great people.

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Just wanted to say hi, I have posted a couple of times in a discussion about ‘awake all night’ and wanted to say hi.

Got my diagnosis couple of days ago, top of the class GS 9 and PSA 367.5 so lots of effort on my part.

Seriously though just wanted to acknowledge some of the many posts, everyone has their own challenges and kindness and love is in abundance, as my brief profile says, if the world could join this group think how much better things could be! I only see help support and love which is mind blowing and I just hope I can help in some small way.

Anyway learning to get my head round things, was fast tracked and NHS have been unbelievable the care and love from these special people is off the chart, and support from my posts also off the chart. I have my first oncology appointment in a couple of weeks so I guess it all starts then, for now hormone therapy, poor sleep patterns and great people, you know what I’ll take that

Sending everyone love, encouragement and smiles.

Thanks for having me.

  • Sorry to see you join us Gunner, but a very warm welcome. I’ve just read your details and your a fellow metastatic like me, and ex military like me. I’m assuming you were army with that nickname, I was Navy 1975-1991, best years of my life and only left because of domestic problems. 

    With regards to your diagnosis, do not despair or overly worry. I too have been blown away by the support and performance of the NHS and thanks to them I’ve reduced my psa considerably, feel much better mentally and definitely up for the challenge ahead. My only advice would be to take the meds, adopt a great diet and exercise plan and you’ll be fine. We may be classed as incurables but nowadays this disease is very treatable and can definitely keep us around for many years to come, even a decade or more. 

    Best wishes - Gra

  • Hi  with a positive attitude like yours, you will be a member of our club for a very long time. I expect your cancer to sleep well once HT kicks in.    AW

  • Thanks all yep gonna fight want to fight and will fight, so onwards and upwards, just  to say thanks to you all again and I will be back, 

    Sending you all my best now I need some of that sleep stuff.

    catch ya laterSunglasses

  • Welcome   and I love your positive attitude.  You can read others profiles by clicking on their name or avatar (if they have filled it in).  You soon realise that this isn’t such a scary cancer and treatments have changed in the time I have been a member.  I say to my oncologist, just keep me going till you find a cure.

    Best wishes, David

    Please remember that I am not medically trained and the above are my personal views.

  • For me it's keep me going until I can't drink ale and laugh anymore.

  • Hello  

    We have already "spoken" on the New to the Community" group - but another warm welcome to this group from me too.

    My situation changed a couple of weeks ago and you don't have to accept this invitation but I am now also a member of another group on the Community so for you   , &  too here's the link

     Living with incurable cancer forum - patients only 

    You don't have to join this group - to be honest I didn't  want to but after 4.5 years I have done. It's just another space where you can access help and help others.

    Best wishes to all - Brian.

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  • Hi Brian, great to catch up, I really appreciate the link consider me in, going to grab my tea because I’m starving, then I’m joining.

    i appreciate all the comments and posi attitude by all, so this newbie is learning and these groups help in a huge way.

    im in!  

  • Hi Gunner66

    As the others say - welcome!

    With your positive attitude you can work on this and get along OK.

    Don't forget that oft said phrase on the forum - it is a couples disease. I am sure your wife is going through as much turmoil as yourself, but there is plenty of support and resourcefulness amongst the members of this community.

    I am just coming up to the first anniversary of my sky high PSA result and the beginning of the process which you have embarked upon.   The Triplet Therapy approach works (double HT plus chemo) - my PSA started at 953 and now is undetectable <0.025.   I expect to have radiotherapy in a couple of months time to further hit those nasty cells on the head.

    Keep positive, keep exercising, good diet.

    All the best

    KrisPy

    (and I was 9 in 1966 so watched it all on tele - in B&W - and then went to the cinema to see the film of the final, all in glorious technicolour!!)

  • Hi Brian thanks again for invite, I have now sent my request to join, so just waiting. Really appreciate this thanks, look forward to meeting more people not forgetting the other two forums, all full of TOP people.

    My glass is defo ‘half full’

    Thanks to all.Sunglasses

  • Sorry not been on for a little bit as it’s been pretty hard watching my OH struggling with test after test . Hope your doing ok and your still able to get to the sunshine state of Scotland xxc