My question concerns side effects of triptorelin and enzalutamide controlling my stage 4 prostate cancer.
Shortly after I was put on these drugs, I started getting numbness in my feet, often accompanied by burning or strong prickling sensations. Also some numbness and pins and needles in my fingers. (I was diagnoses about five years ago, Gleason score 9, metastasised to a rib.)
Early on I read somewhere that the medication can cause these side effects and considered that it must be so. Recently, though, oncologists have told me that this reaction is extremely rare.
However, Google AI says both these drugs can cause these effects, and refers to Prostate Cancer UK as a source. I realise that AI is not reliable, and have not found anything on the Prostate Cancer UK website to confirm it. I have though found confirmation on other sites, including BNF/Nice, so I am not sure what to make of all this.
The numbness in my feet has continued to develop. On two recent occasions when I had to stand still for a length of time, I could feel nothing at all below my ankles. And last week I think the numbness in the soles of my feet contributed to an accident where I slipped down the stairs at home and injured my ankle quite badly.
I want to trust the oncologists (one is my son, who is very senior in London), but am finding contradictory accounts.
Can you advise?
Many thanks,
Martin
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