Enzalutimide

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Hello everyone. I’m 3 years since from diagnosis of MCRPC and came through Doxetaxel, then Cabazitaxel then R223 and with my PSA at 24 are having to consider taking Enzalutimide but as I am active are concerned of taking on board side effects that seem quite debilitating. If you have experience to share with me it is greatly appreciate,

  • Hi

    I’am on Enzalutamide at the moment, they put me on four tablets a day, the side effects knocked me this way and that, mainly memory loss, dizziness, loss of balance and night leg syndrome, where you keep tossing and turning.

    I had to stop them, after a long chat with my oncologist, I started back on them but for the first month two tablets, which have been OK, just added another so on three still OK, I do take lots of other medication for assorted things, so taking it step by step. 
    If you go on these tablets just like any new medication beware of the side effects I’ve not mentioned them all. 
    Hope that helps.

    stay safe

    Joe

  • Joe

    It’s great to hear from you and hope you can get past some of these side effects. I guess during the next review in 4 weeks I will have to make a decision whether to take Enzalutimide. Look forward to keeping in touch.