Seeking emotional support about Dad

Hello Flora2

I’am deeply sorry about your dad, one of the worst things about this disease, is seeing the one you love fade away before your eyes and being helpless to stop it. 
there have been many brave people on here, who have done their best battling PC, knowing there’s only one winner, me being a stage four is one of them, but ladies like yourself who have been strong and positive, can feel so alone no one knowing how this is upsetting you.

McMillan nurses have a great help line if you want to chat, they’ve dealt with this type of emotional strain many times, you can even get a visit from them, there good people. 
As a terrible insomniac, I know what sleep deprivation is all about, it’s never easy to find a solution for that, apart from the doctors. There’s an anti depressant that also helps you sleep, I tried it, but I’am a various medication so decided to stop. 
Whatever the outcome for your dad, just try and be strong for him, dignity at the later stages is all we have left, so he may be a private person, but whatever he enjoyed doing before, like reading or watching certain programs, try and get his favourite’s, if he’s bed bound, I have a portable CD player and I watch all my favourite movies and series on it. Using headphones so not to disturb my wife, just an idea.

Stay safe.

Joe

Dear Joe

My first reply. Thank you. And such a kind and helpful one too. It means so much to me.

I love your ideas and have stored them away to think through. There are a great many programs and films he loves and a lot of old comedy too which I think might be just what's needed. Thank you. 

I'm so glad I reached out and joined the forum. Reading your words (and those of others who have shared on here) has helped immensely. So thank you yet again for taking the time.

I hope last night wasn't too bad a night for you and that you have a good day whatever it holds for you. 

Perhaps we will meet on here again soon!

All the best for now! 

Hello Flora

I’am on here all the time, I’ve been through a lot and my wife has stood by me, believe me there have been some times that have really frightened her.

Yep you can pick up old boxed series for pennies films too, I was a great lover of the old Ealing films and collected them, plus lots of others, I’am terrible I can watch films over and over plus my many boxed sets.

Make him his favourite meal plus a pudding and a glass of his favourite tipple, that will make him smile. 

stay safe others will answer in time.

Joe

Hi Flora

Just wanted to keep this post active, see if any others can respond as well, hope your OK.

stay safe

Joe

i understand your predicament, for my mum i found talking helped. My dad found talking difficult and the period from knowing that no more could be done until the end was hard, we felt like we mourned her before she went . I have metastatic pc so know my time will come, althougg it's about making every day count, be there and be led by your dad, what he's comfortable talking about. Just let him know that no conversation is off limits no matter how difficult a subject. Best wishes