Stopped treatment

Hello Teatowel 

Sorry to read the above - I am aware of his wishes - BUT you must be strong and refuse the discharge to home as it would be unsafe and you would be unable to cope. 

Do you have a Macmillan office or a "Maggie's" at your hospital? - I would be tempted to call in and tell them you need help with your husband and you don't wish him to come home as you are unable to deal with him.

Be STRONG - and although you need strength to care and look out for your husband - YOU need to be fit and there for him too.

Kind regards - Brian.

Hi Teatowel 

I presume they had a multi disciplinary meeting without your input. The medics have taken upon themselves to withdraw “active “ treatment, arranged OT & Physio. What input did you have about all of this as you as next of kin should have been totally involved to allow you to say your piece . 

I am so sorry not only is your husband but you too have not had a voice in the decision making . 

if they are talking about nursing home . I don’t know much about English law but if he requires continuous nursing care with they accept responsibility for the payments

just checked. Continuous care in a nursing home in England is free if you qualify for NHS Continuing Healthcare (CHC), which covers all costs regardless of your assets. If your needs are less complex, you may receive Funded Nursing Care (FNC), covering only the nursing portion. Otherwise, care is means-tested by the local authority.

you need to ask these pertinent questions.  of could land with bills .

another option could be a hospice where he will be cared for and given pain management as sometimes this is missed in nursing homes . 

sending you hugs 

Liz & OH xx

Thank you, yes, there a macmillan desk but they refer to our local hospice.The hospice called the Rowans are aware of Chris. I will stay strong because I want Chris to have the best possible care..

I have been told they are arranging an MDT and will liaise with me. Portsmouth hospital trust isn’t the best. Thinking about it I will email Pals for support.

Hi

Tell the consultant you want to be present at the MDM meeting it is your right . It allows you to voice your concerns and let’s be honest you know your husband better that all these medics put together. 

I just don’t like them having meetings and  making life changing decisions without you having any voice . 

I think contacting Pals is a good idea to ensure your both receiving the support  you deserve and need . 

Liz xx

Thank you.