Tea towel feeling rung out!

Hello Teatowel 

Thank you for the update and taking the time to do this at this point.

You are both in my prayers and I hope your husband will be able to return home to spend some time with you.

My best wishes go to you both and my thanks to all who are looking out for you both.

Kind regards - Brian.

Thank you for being there for us. Your kindness and support is in measure able. I know my husband would be so comforted to know that you are here for us. God bless you 

Hello Teatowel

im sorry to hear that your husband is still very poorly and know how hard this is for you . I hope you can manage to get him home soon and with the right support for both of you.

Thinking of you and sending you a big hug xxx

My thoughts are with you both

Good evening Teatowel I'm sorry to read about your husband and I do hope he can come home and it is such a pity you have to have a break down to get them to listen to you.

Take care Sheena 

My deep sympathy. 

Been in pretty much same situation with my wife 8 years ago. I have to say that despite the hospital's need for the bed going home did not prove a good option for either of us. Promised care, medical and social, never really happened. 

The last few words of  "I am praying that he can make it home even for a day or two, so long as he is aware of being home." are crucial. Pain relief at home is unlikely to be as effective as in even a busy hospital.

Get any proposed palliative care at home in writing and press for it to be delivered if that is your choice.

Good luck, Dave 

My thoughts are with you x

Hi from one wife to another 

just wondering how you are ?  Life can be difficult but we have to put big brave faces on . 

sending you both big hugs 

Liz & OH XXX

Hi Johnam, 

thank you for your interest and support. I feel as though I am living in two different worlds at the same time. Home, dog walking, cleaning, washing etc., and hospital visits every day. When at home I dread the thought of having to go to the hospital and when at the hospital with my husband I dread having to come home without him. The morning is the worst, I get up and feel lightheaded and dizzy trying to work if all this is really happening. I want my husband to come home but I don’t want him to be in pain and being uncomfortable. The bed the OT arranged for him at home is too small and uncomfortable for him to feel relaxed in. Community care is not very good in our area, hence he became so unwell that I had to call emergency services to get help and treatment for him, no one, other than other wives, can have any idea of the struggles, anxiety and stress we experience every day, simply trying to get the help our partners need, xxx

Thank you for your kindness and supportive words. I have told Doctors that I don’t think home will be a good place for my husband. He wants to come home but I worry about the level and reliability of health care, pain management etc., he would get at home. Community care doesn’t work for seriously unwell people…..in my experience hence he is back in hospital.