Hi everyone
I promised to let the caring people who had read my last post were I was up to when I found out
Here's a brief recap
I was 60 and diagnosed in Sept 2019 and went on Hormone therapy straight away
My diagnoses was T3b N1 M0 - high risk and aggresive
Gleason 4+5=9 treatable not curable
2021 I had chemotherpy followed by a rest and then Radiotherapy
after the treatment my psa remained at 0.1 undetectable until February 2025
So here goes...
In February 2025 my psa went to 0.07 followed by rises in the same year to 0.23 / 0.28 / 0.44 and in December 2025 it then went to 0.53 in just four weeks.
At this point it was sent to MDT via my Urologist
I had a already had a ct scan and a bone scan
MDT wanted a PSMA PET CT Scan which was done 3 weeks ago at the Christie Hospital
On Friday my Urologist called to tell me that they had found some movement on the neck nodes and and stomach nodes
She said firstly that they wanted me to have a biopsy on my neck (to be arranged)
as for the stomach no biopsy was mentioned as yet.
Saturday coming I am to have a camera down my ureatha and into my bladder (this was pretty arranged before the PET scan by the Urologist due to tingling and itchiness in the ureatha along with sore and very aching testicular pain
Urine test for uti was ok.
So that is where I am up to right now.
I already feel less stressful now by sharing this with you my friends, if anyone could give me any advise or questions to ask at my neck biopsy or any forthcoming meeting I would be so grateful
Thank you for reading my post, please all take care
Spud
"You don't know how Strong you are
until being Strong is your only choice"
Bob Marley
