Hi everyone
I promised to let the caring people who had read my last post were I was up to when I found out
Here's a brief recap
I was 60 and diagnosed in Sept 2019 and went on Hormone therapy straight away
My diagnoses was T3b N1 M0 - high risk and aggresive
Gleason 4+5=9 treatable not curable
2021 I had chemotherpy followed by a rest and then Radiotherapy
after the treatment my psa remained at 0.1 undetectable until February 2025
So here goes...
In February 2025 my psa went to 0.07 followed by rises in the same year to 0.23 / 0.28 / 0.44 and in December 2025 it then went to 0.53 in just four weeks.
At this point it was sent to MDT via my Urologist
I had a already had a ct scan and a bone scan
MDT wanted a PSMA PET CT Scan which was done 3 weeks ago at the Christie Hospital
On Friday my Urologist called to tell me that they had found some movement on the neck nodes and and stomach nodes
She said firstly that they wanted me to have a biopsy on my neck (to be arranged)
as for the stomach no biopsy was mentioned as yet.
Saturday coming I am to have a camera down my ureatha and into my bladder (this was pretty arranged before the PET scan by the Urologist due to tingling and itchiness in the ureatha along with sore and very aching testicular pain
Urine test for uti was ok.
So that is where I am up to right now.
I already feel less stressful now by sharing this with you my friends, if anyone could give me any advise or questions to ask at my neck biopsy or any forthcoming meeting I would be so grateful
Thank you for reading my post, please all take care
Spud
"You don't know how Strong you are
until being Strong is your only choice"
Bob Marley
Hello Spud (Spuduknow )
Thanks for posting - we have something else in common apart from a cancer diagnosis - my ex racing greyhound knows everything that's going on with me - and yes, that's a great part of the day, we go for our walk and we forget everything that's going on!!
So I am not sure how much I can help so:
* Here's a link to the Head and Neck cancer group:
I don't know if they can help you with the neck biopsy - but you never know and it's worth joining them and asking!
* Here's a link to our standard list of questions if this will help:
Questions-to-ask-your-healthcare-team.
I wish you well moving forward - you know where we are if you need anything.
(I am off to Turkey for 3 weeks on Tuesday - my daughter is looking after the dog, - she has Grey's herself - but do message me once you are sorted and we must arrange a joint dog walk in one of the parks around Manchester 
).
Best wishes - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
Dogs are wonderful confidantes aren't they. Mine listens to everything but ignores anything which doesn't involve food or walks!
