PSA result this - relief continues

Sounds excellent, wishing you a good spring/summer! 

If you skim my Profile you'll understand why I would urge 6 months between psa checks absolutely minimum. If I'd known what I do now I'd have gone for 3 months!

Continuing good luck, Dave 

Hello Worriedwife 

Brilliant result and long may it continue.

We've travelled this journey together now for 4 years - it feels like iv'e known you a lifetime, we have had some great results, some very sad moments and lost some great friends and even been through doughnut gate - but we are both still here!

Thank you for the support you have provided to me - and everyone else on the Community in those 4 years - your posts have helped countless Community members through some very hard times. Thank you.

I wish you a happy, worry free 6 months.

Kind regards - Brian.

Hello Dave - I’ve just looked at your profile. I’m so sorry to read the disappointing news you have received. I think when they say ‘ tension to cure’, in sheer desperation we grab on to the word ‘cure’ without having the chances of recurrence explained to us - ie there are no guarantees in this darned journey we are all taking. It was wuitr some months after embarking on RT/HT that I stumbled on the word ‘recurrence’! My heart sank and I still get anxious at PSA testing time.

i do hope that your own prospects are more positive now than your profile suggests? I also wish you all the best for the future 

Thank you. I think I was pretty realistic about likelihood of recurrence given original Gleason, but I wasn't counting on lack of any effective monitoring by GP. Why this task is outsourced to amateurs I know not!

Clear to me that psa very likely irrelevant in my case so at least I don't worry too much about that!

I'm OK on decapeptyl and darolutamide other than some tiredness and muscle ache. Not expecting a long respite. 

Good luck to you two, D.

Thank you for your kind words, Brian. It’s funny how we perceive time. My husband feels that RT etc was ages ago. For me it feels like a few months! Oh - and those donuts did cheer!!!!!

Thank you Dave. I have learned that we have to monitor all of our interactions with the NHS! My worry is for those who don’t have the ability to do so!

Absolutely. Would have been very easy for me to take "Normal. NFA" on trust. And some would have......

Regards, Dave